Tagged with: Your Stories
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Katherine’s Story
Katherine was born with Pierre Robin Sequence and a cleft palate in the 80s.
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Joanne’s Story
I'm Joanne Graham, married to Alex and have 2 beautiful sons; Noah, 2 and Isaac, who was born on 1st July 2014 with a unilateral cleft lip and gum notch. We live in South Shields, near Newcastle upon Tyne.
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My Cleft Palate and Speech
I'm Natalie, and I'm 43 years old. I have had a long history of speech and communication problems right from the word go, when it became apparent that from at birth I would have problems with the speech.
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Maz Poole’s Story
Find out about Maz Poole's experiences as the Norfolk and Suffolk Happy Faces Coordinator and a CLAPA Parent Contact.
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My Volunteer Story: Ruth Helstrip
I decided that I didn't want Will to be labelled as a child with a cleft lip and palate and therefore chose not to get involved in any way. All that changed in September 2012 when I received the latest CLAPA magazine. Inside was an interesting feature on the Young People's Council which CLAPA runs.
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My Volunteer Story: Sarah Dennis
In September 2012 I completed the one day official volunteer course in Bristol and met some amazing people who I still regularly speak to now. I like to think of CLAPA as a family, we all support each other, share our highs and our lows and offer encouragement and advice to each other.
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The Hancock’s story
"The operator told us that our baby had a cleft lip and that this maybe associated with some syndromes that may mean that the baby may not survive. The whole thing was handled rather badly. We left the hospital in a state of shock and little information."
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Emily’s Story
"We were delighted to discover we were expecting our second child in the summer of 2011. I had a fairly straightforward pregnancy and normal scans throughout. Our daughter Isabelle was born on 21st April 2012 at 00.52AM, coming quite unexpectedly on her due date. Her birth was very fast and when they handed her to me I couldn't believe how tiny she was at 5lb 9oz.
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My Volunteer Story: Maria Blackhurst
You have to keep in the back of your mind that you can put the family in contact with people who can help and to hear or read those lovely words, ‘thank you,’ is the best reward you can receive.
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An Adventure in Suffolk
CLAPA Camp Adventure By Jenny Lancaster It is very nerve-wracking going somewhere you haven’t been to before, I admit: curiosity certainly killed my cat. But I knew that I was in for a good time –just look at all the new friends I made and you’ll see what I mean!!
