News
News and updates from across every CLAPA region
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Parent Stories |
Georgia’s Story
Georgia's sons, Theo and Jude, were both born with a cleft, 6 years apart. In this powerful piece, Georgia looks back on her experiences of diagnosis, feeding and surgery, hoping to reassure other parents and carers who might be going through similar experiences.
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NHS Cleft Services |
Cleft Appointments During Lockdown
NHS Cleft Teams around the UK have reported that in the months since they’ve started to resume services, more people than usual are missing important appointments. These are known as ‘Did Not Attends’ (DNA) or ‘Was Not Brought’ (WNB) for children. We know there are many reasons why people might miss appointments or cancel them altogether, and together with the Cleft Teams we want to do what we can to help.
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Merry Christmas, CLAPA Community!
12-year-old Amelia, who was born with a cleft palate and who loves singing and dancing, recently performed 'O Holy Night' at her local Nursing Home. Here's Amelia's story, in her words.
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Join CLAPA’s big, festive Jumpathon!
Starting today, Monday 30th November, you're invited to #JumpForCLAPA in our week-long Jumpathon! It's the perfect way to raise awareness of cleft and support our work while having fun and spreading festive joy.
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Research | Research Advertisements |
Research Opportunity: Has coronavirus affected your access to speech and language therapy?
The Royal College of Speech and Language Therapists (RCSLT) wants to find out how the COVID-19 pandemic and the UK-wide lockdown (March-June 2020) has affected people’s access to speech and language therapy.
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Research | Research Advertisements |
Research Opportunity: Adults & Self-Image
The Centre for Appearance Research is looking for adults to test an online writing intervention that aims to help people focus on what their body can do, rather than how it looks.
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Research | Research Advertisements |
Research Opportunity: Mental Health Provision for Children with SLT Needs
Children receiving support for mental health issues are more likely to have Speech, Language and Communication Needs (SLCN), but we do not know how these needs affect the support these children receive. Researchers from the University of York are conducting a survey of 300 families of children with SLCN to find out about the support they've received.
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Parent Stories |
Helen’s Story
Helen, who is now 89, has been supporting CLAPA with our Christmas cards for years. She reflected back on her experiences as a parent of a child who was born with a cleft palate, and has kindly shared her story with us.
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Research | Research Advertisements |
Research Opportunity: Feedback on theEUROlinkCAT Parent Survey Study
The EUROlinkCAT survey is part of a wider project investigating the health and educational needs and achievements of children living with conditions like cleft across Europe in the first 10 years of their lives. They are looking for parents and carers to give their feedback on this survey before its released to the public.
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Research | Research Advertisements |
Research Opportunity: Everyday experiences of adults with a visible difference
The study aims to learn more about the everyday experiences of those born with a visible difference, as well as the different types and forms of support/treatment that are available.
