News
News and updates from across every CLAPA region
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Parent Stories |
Rebecca and Nina’s Story
Any parent or carer in the cleft community will have vivid memories of their child’s cleft surgeries, as well as all the worries that these bring. One year on from her daughter’s cleft palate repair surgery, Rebecca remembers the lead up to the operation as well as the unique stresses brought on by the Coronavirus pandemic.
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Updates from CLAPA | Vacancies | Volunteering Opportunities |
Vacancy: Trustee with Fundraising Experience
The Board is looking for a new Trustee who is aligned to the ethos of the charity and would enjoy the opportunity to contribute their expertise to provide robust and dynamic governance to ensure we achieve our ambitions and remain financially solvent. We would like to enhance our Trustee Board with someone with professional fundraising expertise,
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Research | Research Advertisements |
Research Opportunity: Speech Outcome Measurements at GOSH
Children and young people born with a cleft and their parents are invited to take part in Engagement Groups looking at the 'Outcome Measures' used in Speech and Language Therapy at Great Ormond Street Hospital. There will be three Engagement Groups held over zoom; one for parents and carers, one for young people (12-20 years old), and one for children (9-11 years old).
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Adult Stories |
Michael’s Story
In reflecting on his 20 years of treatment at Great Ormond Street Hospital, Michael, who was born with a bilateral cleft lip and palate, composed two music pieces of music: his Great Ormond Street Hymn, and Symphony No.1. Click to learn about his cleft journey and find out why he wanted to write music.
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Research | Research Advertisements |
Cleft Care Scotland Patient Engagement Group
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Research | Research Advertisements |
Research Opportunity: Young people’s experiences with appearance and body image
The Centre for Appearance Research has launched a new study called TABI (Teen Appearance and Body Image) to explore young people’s experience of appearance and body image using an online survey.
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Adult Issues | Research | Research Summaries |
Research Summary: Treatment Decision Making in Adults with Cleft
This article summarises the results of a new paper on treatment decision making in adults who were born with a cleft, covering adults’ surgical experiences, feelings and concerns with dental care, desire for further treatment, and awareness of entitlement to NHS services.
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Children & Young People's Stories | Fundraising Stories |
Lucy, Keira and Lily’s Presentation for CLAPA
Lucy, Keira and Lily recently secured an incredible £3,000 grant for CLAPA after delivering a winning presentation for the Youth and Philanthropy Initiative (YPI). Here, they tell us how their presentation went, and why they chose CLAPA!
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Adult Stories | Children & Young People's Stories |
Cleft Lip and Palate Awareness Week 2021: Thank You!
This Cleft Lip and Palate Awareness Week,
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Research | Research Advertisements |
Research Opportunity: Experiences of Somali people with visible facial differences
A new study is looking for Somali people with visible facial differences. Waxaan doonay inaanu was ogaano raad-reebka dadka Somalida ah ee wejigoodu duwanyahay
