News
News and updates from across every CLAPA region
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Jenny’s 5k run for CLAPA
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Updates from CLAPA |
A Digital Future: CLAPA in 2021 and beyond
CLAPA has a new strategy for 2021-22. Read on to find out how we plan to keep you informed, connected, reassured and empowered throughout the next year.
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Fundraising Stories | Parent Stories |
Rebecca, Darren and Mason’s story
Throughout their son's cleft journey so far, Rebecca and Darren have received support from CLAPA, as well as healthcare professionals and their family and friends. They wanted to give back and recently set up a Facebook Fundraiser to support our work, raising a phenomenal £1035! Here’s their story.
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Vacancies |
VACANCY: Adult Services Coordinator
The Adult Services Coordinator will be the first point of contact for all work around adults born with a cleft, and will champion this group's needs across the work of the charity. They will work collaboratively to plan and deliver a series of engaging online events, activities and resources for adults, with a particular focus on hard-to-reach groups.
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Vacancies |
VACANCY: Community Engagement Coordinator
Join our small, friendly staff team and lead on developing an exciting new programme of online events and activities to give people affected by cleft the chance to connect with each other and form supportive communities.
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Research | Research Advertisements |
Research Opportunity: Ethical Decision-Making in Care During the Pandemic
Parents, carers and grandparents involved with receiving care from maternity or children's surgery services during the pandemic are invited to take part in a focus group discussion about their perception of how services were organised and delivered.
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Research | Research Advertisements |
Research Opportunity: Parents’ & Carers’ Experiences of Support for Cleft Lip (0-10 years)
Are you a parent or carer of a child up to 10 years old who has a cleft lip (with or without cleft palate)? Researchers from St George’s University would like to hear your views about the information and support you've received for your child's condition.
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Research | Research Summaries |
Research Summary: Parents’ & carers’ experiences of children with appearance-affecting conditions
Back in July 2020, we advertised a Centre for Appearance Research (CAR) study on parents' and carers' experiences of children with appearance-altering conditions, such as cleft. We are excited to be able to share with you the findings of the study as summarised by CAR.
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Children & Young People's Stories |
Hesed’s Story
Hesed was born with a cleft lip and palate and experienced difficulties with his speech for the first few years of his life. Now older and propelled on by quarantine, Hesed has recently created his very own YouTube channel called 'When Kids Talk' (with support from mum and dad)! Here's his story so far, as told by him.
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Research | Research Summaries |
Research Summary: Interpersonal Relationships in Adults with Cleft
CLAPA's 'Whole of Life' survey in 2018 asked adults in the UK who were born with a cleft all about their experiences, including the impact of their cleft on their personal relationships. This paper looks at the results of this survey in detail and considers what the findings might mean for the UK cleft community.
