News
News and updates from across every CLAPA region
-
Adult Stories | East of England Branch | Parent Stories | Parents | Your Stories |
Maz Poole’s Story
Find out about Maz Poole's experiences as the Norfolk and Suffolk Happy Faces Coordinator and a CLAPA Parent Contact.
-
Happy Faces |
Redditch Happy Faces!
Selena Foster was inspired to set up a Happy Faces group after her daughter Lorena was born with a bilateral cleft lip and palate in 2012: “When Lorena was born we had so many questions and I really wanted to meet with other parents in a similar situation”.
-
South London & Surrey Branch |
South London and Surrey Go Ape!
South London & Surrey branch had their first outing for 12 - 17 year olds this week as they headed out to Go Ape.
-
Parent Stories | Pierre Robin Sequence |
Lily’s Journey
Over the next couple of weeks we learned more about the condition and how to handle our baby confidently and then the shock question came! Which one of us parents would insert the NPA tube and feeding tube when Lily goes home?
-
Superhero Fun Day
Families from the South West region were invited to Salisbury Art Centre on 30th March 2014 to enjoy a ‘Super Hero Family Fun Day’ with The Spires Cleft Centre. Lotte Heath, aged 7, was our journalist.
-
Fundraising Stories | Fundraising: Challenges |
Emma Smith tackles the 3 Peaks Challenge
CLAPA supporter, Emma Smith, bravely tackled the 3 Peak Challenge to raise money for CLAPA, in memory of her brother.
-
Fundraising: Cycling |
1000 miles for CLAPA
CLAPA would like to say a big thank you to Tom McKay, Dave Hall, Tom Agar and Ben Rathbone for taking on this tough challenge to raise money for CLAPA!
-
South Wales Branch |
South Wales Branch Present to Dentistry Students
Back in November 2013, dentistry student (and soon to be CLAPA volunteer) Steph Kirby, contacted CLAPA to say she was organising an evening at Cardiff University on Cleft Lip and/or Palate. She had already arranged for a couple of healthcare professionals to talk, however also wanted to get individuals affected by cleft to share their experiences.
-
Fundraising Stories |
Marion’s Sponsored Slim
Thomas started his ‘journey' in June 2011, and unlike other little boys and girls he was born with a cleft lip and palate. The following series of photographs will help you track his life and progress over the last 2 years, starting with the first when he was just a couple of weeks old and still had his feeding tube in.
-
Cleft Lip and Palate | Diagnosis | Research Summaries |
STUDY: Prenatal Diagnosis of Orofacial Clefts
The main aim of the study was to find out if there is a link between the timing of a diagnosis, how the mothers felt about the information they received and how satisfied they were with the services .
