Tagged with:Research
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Cleft Care Scotland Patient Engagement Group
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Research Opportunity: Young people’s experiences with appearance and body image
The Centre for Appearance Research has launched a new study called TABI (Teen Appearance and Body Image) to explore young people’s experience of appearance and body image using an online survey.
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Research Summary: Treatment Decision Making in Adults with Cleft
This article summarises the results of a new paper on treatment decision making in adults who were born with a cleft, covering adults’ surgical experiences, feelings and concerns with dental care, desire for further treatment, and awareness of entitlement to NHS services.
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Research Opportunity: Experiences of Somali people with visible facial differences
A new study is looking for Somali people with visible facial differences. Waxaan doonay inaanu was ogaano raad-reebka dadka Somalida ah ee wejigoodu duwanyahay
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Research Opportunity: How has Adult Cleft Care Been Impacted by COVID-19?
Are you an adult (16+) whose cleft care was impacted by COVID-19? The Centre for Appearance Research would love to hear about your experiences of treatment over the pandemic.
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Research Opportunity: Ethical Decision-Making in Care During the Pandemic
Parents, carers and grandparents involved with receiving care from maternity or children's surgery services during the pandemic are invited to take part in a focus group discussion about their perception of how services were organised and delivered.
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Research Opportunity: Parents’ & Carers’ Experiences of Support for Cleft Lip (0-10 years)
Are you a parent or carer of a child up to 10 years old who has a cleft lip (with or without cleft palate)? Researchers from St George’s University would like to hear your views about the information and support you've received for your child's condition.
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Research Summary: Parents’ & carers’ experiences of children with appearance-affecting conditions
Back in July 2020, we advertised a Centre for Appearance Research (CAR) study on parents' and carers' experiences of children with appearance-altering conditions, such as cleft. We are excited to be able to share with you the findings of the study as summarised by CAR.
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Research Summary: Interpersonal Relationships in Adults with Cleft
CLAPA's 'Whole of Life' survey in 2018 asked adults in the UK who were born with a cleft all about their experiences, including the impact of their cleft on their personal relationships. This paper looks at the results of this survey in detail and considers what the findings might mean for the UK cleft community.
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The Impact of Cleft-Related Communication Difficulties on Mental Health
A Speech and Language Therapy student from Manchester Metropolitan University is looking to interview people born with a cleft aged 18-25 as part of a dissertation project looking at the effects of a cleft on communication and its impact on mental health.
