Research Opportunity: Assessing Aesthetic Outcomes Following Cleft Lip Surgery

March 7, 2022

Researchers from Newcastle Cleft Team need people affected by cleft to join their Patient Consultation Group for a new project – apply ASAP!

About the Study

After a cleft palate repair, there are reliable ways to measure speech outcomes, dental health, and the success of an alveolar bone graft in the future. This means that clinicians can look at these outcomes and get a good idea of what works well during a cleft palate repair surgery.

There is currently no such tool for measuring how successful a cleft lip repair was, particularly when thinking about aesthetic outcomes (i.e. how it looks). The assessment tools we have at the moment are biased and not practical for everyday use. This means that clinicians don’t really know which techniques and protocols give the best outcomes for people born with a cleft lip.

A team of researchers from the Newcastle Cleft Team and Faculty of Medical Sciences at Newcastle University would like to carry out a piece of research to look at whether eye-tracking could be a useful tool for measuring these outcomes. They need your help to find out whether such a tool is needed and, if so, they’d also like your opinion on how they plan to run the study. You would also be asked to comment on their information leaflet and consent form.

Your commitment:

  • To attend a 1-hour meeting on zoom on Monday 21st March from 7-8 pm to listen to information about the study and answer questions and provide feedback to help inform the research.
  • To read and provide feedback on written literature to accompany the study which includes information leaflets and consent forms.

To take part you must be:

  • Aged 18+
  • A parent/carer of a child who was born with a cleft or an adult who was born with a cleft
  • Able to join a zoom meeting on Monday 21st March from 7-8pm
  • Able to access emails and attachments sent out with an email
  • Able to comment on written literature (you do not necessarily have to have a high level of reading ability in English, but if not, we’d like you to be able to advise what changes we need to do to make it more accessible)
  • Able to contribute to the discussion

CLAPA is committed to creating diverse and inclusive environments and we would like to encourage people from all backgrounds and walks of life to get involved and contribute their voice to the discussion.

How to take part

To take part and for further information please complete the enquiry form.

We cannot guarantee that everybody who enquires will be selected to participate.

If you would like to ask any questions then please get in touch with Gillian on [email protected]