Tagged with:Research
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Research Opportunity: Parents’ & Carers’ Experiences of Support for Cleft Lip (0-10 years)
Are you a parent or carer of a child up to 10 years old who has a cleft lip (with or without cleft palate)? Researchers from St George’s University would like to hear your views about the information and support you've received for your child's condition.
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Research Summary: Parents’ & carers’ experiences of children with appearance-affecting conditions
Back in July 2020, we advertised a Centre for Appearance Research (CAR) study on parents' and carers' experiences of children with appearance-altering conditions, such as cleft. We are excited to be able to share with you the findings of the study as summarised by CAR.
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Research Summary: Interpersonal Relationships in Adults with Cleft
CLAPA's 'Whole of Life' survey in 2018 asked adults in the UK who were born with a cleft all about their experiences, including the impact of their cleft on their personal relationships. This paper looks at the results of this survey in detail and considers what the findings might mean for the UK cleft community.
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The Impact of Cleft-Related Communication Difficulties on Mental Health
A Speech and Language Therapy student from Manchester Metropolitan University is looking to interview people born with a cleft aged 18-25 as part of a dissertation project looking at the effects of a cleft on communication and its impact on mental health.
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Research Opportunity: Has coronavirus affected your access to speech and language therapy?
The Royal College of Speech and Language Therapists (RCSLT) wants to find out how the COVID-19 pandemic and the UK-wide lockdown (March-June 2020) has affected people’s access to speech and language therapy.
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Research Opportunity: Adults & Self-Image
The Centre for Appearance Research is looking for adults to test an online writing intervention that aims to help people focus on what their body can do, rather than how it looks.
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Research Opportunity: Mental Health Provision for Children with SLT Needs
Children receiving support for mental health issues are more likely to have Speech, Language and Communication Needs (SLCN), but we do not know how these needs affect the support these children receive. Researchers from the University of York are conducting a survey of 300 families of children with SLCN to find out about the support they've received.
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Research Opportunity: Feedback on theEUROlinkCAT Parent Survey Study
The EUROlinkCAT survey is part of a wider project investigating the health and educational needs and achievements of children living with conditions like cleft across Europe in the first 10 years of their lives. They are looking for parents and carers to give their feedback on this survey before its released to the public.
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Research Opportunity: Everyday experiences of adults with a visible difference
The study aims to learn more about the everyday experiences of those born with a visible difference, as well as the different types and forms of support/treatment that are available.
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Research Opportunity: Parents of babies born in lockdown
Was your baby born with a cleft lip in the period just before or during the UK Lockdown? Researchers at the Centre for Appearance Research (CAR) would like to hear from you!
