Cleft Care Scotland Patient Engagement Group

May 28, 2021

Would you like to have a say in NHS cleft care in Scotland?

Cleft Care Scotland is inviting applications from people to join their recently formed Patient Engagement Group.  To join the group, you need to be

  • An adult who was born with a cleft
  • A young person who was born with a cleft (parental permission required)
  • A parent/carer of a child who was born with a cleft


  • live in Scotland
  • able to attend an online meeting every 6-8 weeks

The group is new, and so the nature of your involvement may change, but at the moment, it would include:

  • Discussing patient/carer relevant items for Cleft Care Scotland Steering Group
  • Sharing views of lived experience from a patient/parent perspective
  • Gathering and representing the views of the cleft community
  • Contributing to the development of resources, e.g. questionnaires, leaflets, newsletter, website by giving your views on the wording/layout, etc.
  • Guide Cleft Care Scotland on proposed patient activities such as an annual patient/carer event

We are keen to have a diverse group of voices and welcome people of all genders, ages, abilities, ethnicities, sexualities and backgrounds to apply. We want a mix of cleft lip and/or palate experience. We would also like a geographical spread and encourage people from all over Scotland, including rural mainland and the islands, to note their interest.

You don’t need to have any formal training, just a willingness to read through any materials sent through ahead of meetings and engage in open discussions.  For further information about Cleft Care Scotland, please visit their website.

How to Apply

If you are interested in joining the Cleft Care Scotland (CCS) Patient Engagement Group, please email Gillian Kinstrie, Programme Manager at Cleft Care Scotland, at [email protected] Please include 1-2 paragraphs explaining your connection to cleft and why you’d like to be involved.

You can also submit your expression of interest via us by emailing [email protected] and we will forward on to the Programme Manager.

If there is anything we can do to make your application easier, please let us know at [email protected]