Tagged with: Parents
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Awareness Week 2018: Shirley-ann and Beth’s story
Speaking to Beth, now ten-years-old, it’s clear that being born with a cleft has not held her back. She speaks cheerfully about school and is excited to tell her story. “I’m fine to talk about it at school if people ask,” she explains. “I don’t worry about explaining everything. I just tell them ‘this is something I was born with’.”
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Awareness Week 2018: Katie’s Story
"One of the toughest things about having a child with cleft is knowing that when they are under one year old you will have to take them into a hospital to have surgery. They will have to have general anaesthetic, to endure hours on the operating table..[i]t is a real challenge for you as a new parent, and something that we wouldn’t wish on anyone."
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Tell Us Your Story
The Centre for Appearance Research is looking for parents of a child with a cleft aged between three and four in the UK. You will be invited to take part in a one-to-one telephone interview with a researcher about your experiences of having a child born with a cleft.
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Changes to CLAPA’s Peer and Parent Support Service
Our UK-wide support service for parents and adults with a cleft is now safer and easier to use than ever before.
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Jasper’s Story
"I knew what a cleft lip was, and I love all things quirky and unique and I knew that he would be beautiful no matter what. In the grand scheme of things, it wasn't anything life threatening, it could have been a hell of a lot worse."
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Appearance Matters 7
Researchers at the Centre for Appearance Research (CAR) at the University of the West of England are organising Appearance Matters 7, a leading national conference focusing on appearance.
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Children
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CLAPA receives funding from the Schuh Trust
We’ve received £9,934 from the Schuh Trust for our work in the Central region
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Volunteer Tanya Clark puts on a waxing extravaganza!
Even before Tanya Clark's son Brooklyn was born last year with bilateral cleft lip and palate she was determined to support others in a similar situation and has been volunteering and raising funds ever since!
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Maz Poole’s Story
Find out about Maz Poole's experiences as the Norfolk and Suffolk Happy Faces Coordinator and a CLAPA Parent Contact.
