Charlie was diagnosed with a cleft lip & bilateral talipes at our 20-week scan; he measured a small head, which made professionals think there was more to it than what meets the eye.
I guess our story begins where most others do. We found out our baby has a unilateral cleft lip & palate at our 20-week anomaly scan. At first, Tom & I weren't really that bothered - we didn't know much about it; apart from that, it affected how a child looks and can be fixed.
Rachael's daughter Anya was born with a bilateral cleft lip and palate. Rachael reflects on their journey over the past year from diagnosis to lip repair surgery.
"The cursor in the search bar blinked. Fingers sat motionless on the keys. Is this what we want to do? What are we hoping to find out? Why am I thinking, “how bad will it be?” Why her? Will she be okay? What will her life be like? All the questions that you may have wistfully imagined answers to while watching the sunrise now cascaded in search of answers in front of a monitor. The idea of finding out as frightening as not knowing."
World Mental Health Day 2018
Wednesday 10th October is World Mental Health Day 2018. Read more about how being born with a cleft can affect your mental health, and how CLAPA is working to support people like you.
Parent and Peer Supporter Service
When you’re going through a tough time, sometimes the only thing that helps is talking to someone else who’s been through it all before and can understand exactly what you’re going through.
Awareness Week 2018: Shirley-ann and Beth’s story
Speaking to Beth, now ten-years-old, it’s clear that being born with a cleft has not held her back. She speaks cheerfully about school and is excited to tell her story. “I’m fine to talk about it at school if people ask,” she explains. “I don’t worry about explaining everything. I just tell them ‘this is something I was born with’.”
Awareness Week 2018: Katie’s Story
"One of the toughest things about having a child with cleft is knowing that when they are under one year old you will have to take them into a hospital to have surgery. They will have to have general anaesthetic, to endure hours on the operating table..[i]t is a real challenge for you as a new parent, and something that we wouldn’t wish on anyone."
Tell Us Your Story
The Centre for Appearance Research is looking for parents of a child with a cleft aged between three and four in the UK. You will be invited to take part in a one-to-one telephone interview with a researcher about your experiences of having a child born with a cleft.
Changes to CLAPA’s Peer and Parent Support Service
Our UK-wide support service for parents and adults with a cleft is now safer and easier to use than ever before.