Tagged with:Parents

  • Nick’s Story

    28 Jun 2019

    "The cursor in the search bar blinked. Fingers sat motionless on the keys. Is this what we want to do? What are we hoping to find out? Why am I thinking, “how bad will it be?” Why her? Will she be okay? What will her life be like? All the questions that you may have wistfully imagined answers to while watching the sunrise now cascaded in search of answers in front of a monitor. The idea of finding out as frightening as not knowing."

  • World Mental Health Day 2018

    10 Oct 2018

    Wednesday 10th October is World Mental Health Day 2018. Read more about how being born with a cleft can affect your mental health, and how CLAPA is working to support people like you.

  • Parent and Peer Supporter Service

    13 Aug 2018

    When you’re going through a tough time, sometimes the only thing that helps is talking to someone else who’s been through it all before and can understand exactly what you’re going through.

  • Awareness Week 2018: Shirley-ann and Beth’s story

    10 May 2018

    Speaking to Beth, now ten-years-old, it’s clear that being born with a cleft has not held her back. She speaks cheerfully about school and is excited to tell her story. “I’m fine to talk about it at school if people ask,” she explains. “I don’t worry about explaining everything. I just tell them ‘this is something I was born with’.”

  • Awareness Week 2018: Katie’s Story

    8 May 2018

    "One of the toughest things about having a child with cleft is knowing that when they are under one year old you will have to take them into a hospital to have surgery. They will have to have general anaesthetic, to endure hours on the operating table..[i]t is a real challenge for you as a new parent, and something that we wouldn’t wish on anyone."

  • Tell Us Your Story

    3 Nov 2017

    The Centre for Appearance Research is looking for parents of a child with a cleft aged between three and four in the UK. You will be invited to take part in a one-to-one telephone interview with a researcher about your experiences of having a child born with a cleft.

  • Changes to CLAPA’s Peer and Parent Support Service

    7 Nov 2016

    Our UK-wide support service for parents and adults with a cleft is now safer and easier to use than ever before.

  • Jasper’s Story

    10 May 2016

    "I knew what a cleft lip was, and I love all things quirky and unique and I knew that he would be beautiful no matter what. In the grand scheme of things, it wasn't anything life threatening, it could have been a hell of a lot worse."

  • Appearance Matters 7

    16 Dec 2015

    Researchers at the Centre for Appearance Research (CAR) at the University of the West of England are organising Appearance Matters 7, a leading national conference focusing on appearance.

  • FAQs

    4 Nov 2015