Tagged with: Cleft Lip and Palate

  • #MyCleftStory a year on, through the eyes of Casper’s mummy

    8 May 2019

    "What did that mean?  Did that mean Casper would need more palate surgery?  Did that mean Casper’s speech would still not develop?  Again, I was overwhelmed and hit by a pang of too many emotions and my role of mummy being tested." In honour of Awareness Week, Jemma shared with CLAPA her experiences with her son, Casper over the past year.

  • Denise’s Story

    7 May 2019

    All the treatment was being geared up towards the operation to close Kenny’s cleft lip at 3 months of age. Initially, that operation couldn’t come quick enough, but by the time he was 3 months old, I’d grown accustomed to how he looked and was a bit fearful of the change. Our son was a smiley, happy, very content baby. It seemed wrong that he had to go through this.

  • Volunteer Roles

    3 Nov 2015

  • How Volunteering Works

    3 Nov 2015

  • What is Cleft Lip & Palate?

    6 Oct 2015

  • Experiences and support needs of adults born with a cleft lip and/or palate

    3 Jun 2015

    Individual telephone interviews were conducted with 52 adults with cleft lip and/or palate living in the UK. This research identified three main topic areas: Growing up with a cleft; Living with a cleft as an adult; and Starting a family.

  • A picture of Ashley holding her son, Finlay

    CLAPA receives funding from the Schuh Trust

    15 May 2015

    We’ve received £9,934 from the Schuh Trust for our work in the Central region

  • A pregnant woman getting an ultrasound scan

    STUDY: Prenatal Diagnosis of Orofacial Clefts

    5 Jan 2014

    The main aim of the study was to find out if there is a link between the timing of a diagnosis, how the mothers felt about the information they received and how satisfied they were with the services .

  • Disney’s The Lone Ranger and The Portayal of Cleft Lip

    16 Jul 2013

    We’re extremely disappointed to see that Disney are once again cashing in on prejudice by giving their villain in the upcoming Lone Ranger film a very visible prosthetic cleft lip as part of his ‘look’ as an evil, sinister character. Not only is this incredibly lazy storytelling, it’s also sending a deeply harmful message that will impact the 90,000 people that were born with a cleft in the UK as well as others worldwide.

  • A young boy with a repaired cleft lip smiling

    STUDY: Dental Caries, Oral hygiene and oral clearance in children with craniofacial disorders

    24 Jan 2013

    This study suggests that children born with CL/P are more likely to get dental decay. The reasons behind this are many and varied but includes the fact that these children seem to find tooth brushing harder and retain foods/sugars longer in their mouths than their unaffected friends.