Cleft Lip & Palate Association

Experiences and support needs of adults born with a cleft lip and/or palate

3 Jun 2015

Individual telephone interviews were conducted with 52 adults with cleft lip and/or palate living in the UK. This research identified three main topic areas: Growing up with a cleft; Living with a cleft as an adult; and Starting a family.

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A picture of Ashley holding her son, Finlay

CLAPA receives funding from the Schuh Trust

15 May 2015

We’ve received £9,934 from the Schuh Trust for our work in the Central region

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A pregnant woman getting an ultrasound scan

STUDY: Prenatal Diagnosis of Orofacial Clefts

5 Jan 2014

The main aim of the study was to find out if there is a link between the timing of a diagnosis, how the mothers felt about the information they received and how satisfied they were with the services .

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Disney’s The Lone Ranger and The Portayal of Cleft Lip

16 Jul 2013

We’re extremely disappointed to see that Disney are once again cashing in on prejudice by giving their villain in the upcoming Lone Ranger film a very visible prosthetic cleft lip as part of his ‘look’ as an evil, sinister character. Not only is this incredibly lazy storytelling, it’s also sending a deeply harmful message that will impact the 90,000 people that were born with a cleft in the UK as well as others worldwide.

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A young boy with a repaired cleft lip smiling

STUDY: Dental Caries, Oral hygiene and oral clearance in children with craniofacial disorders

24 Jan 2013

This study suggests that children born with CL/P are more likely to get dental decay. The reasons behind this are many and varied but includes the fact that these children seem to find tooth brushing harder and retain foods/sugars longer in their mouths than their unaffected friends.

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CRANE Publishes Findings of Annual Report

13 Dec 2012

The latest Annual Report from the CRANE database has shown an unacceptably high percentage of babies with cleft palate being diagnosed after the 24-hour mark.

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