Here is a brief description of some of our volunteer roles and what they involve.
Join a Patient Voices Group
Patient Voices Groups let volunteers provide the patients’ perspective to cleft teams. Cleft teams need to consult with patients on the way they provide services; your role will be to act as the point of contact between the local cleft community and the cleft team. You need to represent the views of the community not just your own views and each cleft team does things a bit differently so you might be attending focus group discussions, attending board meetings or having a chat with a member of the cleft team. You will need to go to meetings, which may be held during weekdays, and we will reimburse your travel expenses. You will also need to be able to talk to other families to find out their views on particular issues, be professional when dealing with colleagues, and maintain confidentiality at all times. The role also involves a small amount of administration so you need to be IT literate, and able to use email and the internet.
Social Media Administrator
You would help to review content posted on our Facebook support groups, signposting members to CLAPA services such as our Peer & Parent Support Service, events and activities, and reporting any Safeguarding concerns.
Online Events Host
You will be welcoming participants to our online events, giving introductions and an overview of the event, and ensuring everyone feels involved and has an opportunity to participate.
You will be managing the IT system of an online event, ensuring everyone attending is invited and able to use their equipment to participate in the activity. You may be organising break out rooms, collating information or helping those who are unfamiliar with technology to be included.
Fundraising allows you to be creative and to deliver and take part in a whole range of fundraising activities to support CLAPA!
You could organise or co-ordinate other local fundraisers, or you might simply have an idea for a one-off fundraising activity you want to do. You could also assist us with publicising events, organising collections or raising money through craft skills and events.
You can do this role anytime and anywhere it suits you, and it’s also ideal for getting your work colleagues, friends and family involved! If you’re happy to be included, we love to feature our fundraisers on our website and newsletter.
You will be an ambassador for CLAPA and will be using our charity number and name so there are some legal requirements you need to adhere to while fundraising.
As a Parent Supporter, you would act as the main point of contact for parents of children affected by cleft, including those with unborn children (who’ve usually just found out at their 20 week scan). This involves providing information as well as offering emotional support.
This role is crucial in providing information and peer support, especially emotional support, to all parents of children affected by cleft. This is mainly done by phone and email, through Facebook or occasionally in person (a day of training is provided).
Acting as the main point of contact for parents seeking support with non-medical queries about cleft and related conditions (the local Cleft Team answers enquiries about the medical side, we help with everything else!) and you can also inform families about other resources and services available. You will be asked to maintain regular contact with CLAPA and complete a simple feedback form.
As a Peer Supporter, you would act as the main point of contact for young people and adults with, and affected by, cleft. This involves providing factual information as well as offering emotional support by phone, email and possibly face to face.
This role is crucial in providing information and peer support, especially emotional support, to any young person or adult in the UK affected by cleft. This is mainly done by phone and email, through social media or occasionally in person (a day of training is provided). This is not an advice or counselling role, but focuses on information provision, emotional support, being a ‘listening ear’ and very often, sharing your personal experience of cleft in order to assist and support others. We will ask you to maintain regular contact with CLAPA and complete a simple feedback form.
Young People’s Volunteer
You would be helping young people to build confidence and self-esteem while participating in a range of activities with their peer group, running or supporting events online and ensuring young people are kept safe.
Awareness Talk Volunteer
You would act as an ambassador for CLAPA and raise awareness about cleft with schools, student midwives and other health care professionals.
Get in touch with us:
Email [email protected]