Here is a brief description of each volunteer role and what it involves. We hope to get you volunteering for CLAPA really soon!
Join a Patient Voices Group
These local groups bring together a range of people who can use their experiences of cleft services to represent the views of the cleft community, providing the patient perspective. Patient Voices Groups act as a point of contact between the local cleft community and the Cleft Service with the aim of maintaining and developing excellence in Cleft treatment and services.
By becoming a member of the Adult Voices Council (AVC), you will be part of a group of people, acting as a voice for adults affected by cleft across the UK, generating and forming ideas, promoting awareness of services from CLAPA and the Cleft Teams and informing and maintaining contact with CLAPA National. We ask you to attend four national meetings per year (travel expenses are provided) and to help plan and organise events, liaise with other AVC members and CLAPA, deal with enquiries and communicate with Cleft Teams and local Branches.
Adult Meet-Ups Organiser
One of our newest initiatives is organising meet-ups for adults born with a cleft around the UK. These are informal gatherings which can be any format that suits you, just as long as it brings adults together and gives everyone the chance to form a supportive local community.
If you’re interested, you’ll get full training and support from your local Regional Coordinator or Engagement Officer. Get in touch for more information.
Branch Committee Member
As a Branch Committee Member, you can help to run one of our local CLAPA Branches. These roles are ideal for anyone with administrative, Committee or charity experience but are also a great way to learn if you’re interested in working for a charity or learning new skills. Each Branch has three essential Officer roles, Chair, Secretary and Treasurer and other roles are also available. Full guidance and support in these roles, is provided. Being part of a Branch Committee is great fun – most Branches organise local events, social activities and much more so it’s an ideal way to get to know your local cleft community.
Roles vary but include chairing/attending Branch meetings, organising events, managing a budget, maintaining regular contact with CLAPA, dealing with enquiries and liaising with Cleft Teams.
As a Clinic Volunteer, your role is to be a friendly face and welcome patients and parents to their local Cleft Clinic. As a Clinic Volunteer, you are a point of contact between CLAPA, people affected by cleft and the Cleft Teams, to provide information and signposting to parents and individuals affected by cleft at Cleft Outpatients’ Clinic sessions.
This role involves working closely with CLAPA staff and health professionals along with people affected by cleft. It does involve the need to be able to get to your local Cleft Clinic, either by car or public transport (we reimburse all your travel expenses) and you would need to be available during the week. You also need to be able to support families and adults in a warm but professional manner and to maintain confidentiality at all times.
Fundraising allows you to be creative and to deliver and take part in a whole range of fundraising activities to support CLAPA!
You could organise or co-ordinate other local fundraisers, or you might simply have an idea for a one-off fundraising activity or event. You could also assist us with publicising events, organising collections or raising money through craft skills and events.
This role can take place at any time and anywhere to suit you and it’s also ideal for getting your work colleagues, friends and family involved!. If you’re happy to be included, we love to feature our fundraisers on our website and newsletter.
You will be an ambassador for CLAPA and will be using our charity number and name so there are some legal requirements you need to adhere to while fundraising.
Happy Faces Group Coordinator
As a Happy Faces Group Coordinator, you have the opportunity to organise local meetings and events for families affected by cleft. Happy Faces Groups vary in size but all provide a meeting space for parents and children affected by cleft to socialise and access information and support in a mutually supportive space.
Your role would involve coordinating the local members of the Happy Faces group and advertising Happy Faces activities via the local Cleft Team and CLAPA. In addition, if you would like to, you can use a variety of social media (don’t worry if you’re not familiar with Facebook, Twitter etc – full training is given!) You would also act as the main point of contact for anyone locally seeking information about CLAPA to be able to inform families about other resources and services available. We would ask you to maintain regular contact with CLAPA and complete some simple admin forms from time to time.
Please note that this role requires you to attend a 2 day Parent Contact training weekend – you can do this whether or not you have already attended a Volunteer Induction.
As a Parent Supporter, your role would be to provide peer support to new and prospective parents of children affected by cleft. This involves providing information as well as offering emotional support.
This role is crucial in providing information and peer support, especially emotional support, to all parents of children affected by cleft. Support can be provided by telephone, email, social media or face-to-face.
Acting as the main point of contact for parents seeking support with non-medical queries about cleft and related conditions (the local Cleft Team answers enquiries about the medical side, we help with everything else!) and you can also inform families about other resources and services available. You will be asked to maintain regular contact with CLAPA and complete a simple feedback form for each contact you receive.
Please note that this role requires you to attend a 2 day Parent Supporter training weekend – you can do this whether or not you have already attended a volunteer induction.
As a Peer Supporter, your role would be to provide peer support to adults and young people affected by cleft. This involves providing information as well as offering emotional support.
This role is crucial in providing information and peer support, especially emotional support. Support can be provided by telephone, email, social media or face-to-face.
Acting as the main point of contact for adults and young people seeking support with non-medical queries about cleft and related conditions (the local Cleft Team answers enquiries about the medical side, we help with everything else!) and you can also inform adults and young people about other resources and services available. You will be asked to maintain regular contact with CLAPA and complete a simple feedback form for each contact you receive.
Please note that this role requires you to attend a 2 day Peer Supporter training weekend – you can do this whether or not you have already attended a Volunteer Induction Day.
Residential Weekend Volunteer
This role involves providing support to CLAPA staff at Residential Weekends for children and young people affected by cleft. This is a great way of helping young people to gain mutual support and build confidence while participating in a range of activities in their peer group.
The role involves running or assisting with activities and liaising directly with children, young people and their families. You will need to have confidence in communicating with young people, be happy to undergo Disclosure and Barring Service (DBS) checks and participate in online Safeguarding training.
This role involves acting as an ambassador for CLAPA and providing a range of activities to support our work with families, children, young people and adults affected by cleft, as well as professionals involved with this work. You would help us to raise awareness and provide information about CLAPA via social media, using PR and marketing tools as well as in person and with local Cleft Teams, Branches and other groups.
If you are interested in volunteering with CLAPA in one of these roles, please contact your Regional Coordinator or email email@example.com.
Who is my Regional Coordinator?
Central England – Claire Evans, firstname.lastname@example.org, 07792 772362
East of England – Hamza Anwar, email@example.com, 07772 684 398
South East England (including London) – Cherry LeRoy, firstname.lastname@example.org, 079855 38982
Scotland – Gillian McCarthy email@example.com, 07586 045402
South West, North West and North East England, Wales and Northern Ireland – Julia Begueria, firstname.lastname@example.org, 020 7833 4883