South West South Wales News
News and updates from across every CLAPA region
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NHS Cleft Services | Updates from CLAPA |
Summer Survey 2020
Are you personally affected by cleft? Could you take 10 minutes to help us better support the UK cleft community by telling us how the lockdown has affected you?
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Updates from CLAPA |
A Letter from our Chair of Trustees
As a result of the pandemic, CLAPA expects to lose half its income over the next six months. The future of the charity is in your hands - can you help us keep going?
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Updates from CLAPA |
Government funding for charities falls short
CLAPA welcomes the government’s announcement of funding to help charities through the devastating impact of the coronavirus outbreak. But like many organisations who have been under pressure for long before the outbreak hit our shores, we’re concerned this isn’t nearly enough.
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Updates from CLAPA |
Services Survey
We're reaching the end of a big grant-funded project, and with no other funding pools available, it's very likely we'll have to scale back some of our services. This survey is a way for you to tell us what matters to you and help guide the way we design our services to make sure these changes have the least impact on the people who need them the most.
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Adult Issues | CLAPA Blogs | Genetics | Research | Research Summaries | Staff Blog |
CLAPA Presents at European Cleft Conference in Utrecht
Adult Services Coordinator Kenny Ardouin reports back on his time in Utrecht talking about CLAPA's Adult Services Project and learning from others who'd travelled from all around the world.
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CLAPA Blogs | CLAPA40 | Updates from CLAPA |
Carol Vorderman Leads Celebrations for CLAPA’s 40th Anniversary
On Thursday 27th June, CLAPA celebrated our 40th anniversary with proud Patron Carol Vorderman leading a round of thank-you speeches to founding members and Trustees past and present.
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CLAPA40 | Fathers | Parents | Volunteering Stories | Your Stories |
Nick’s Story
"The cursor in the search bar blinked. Fingers sat motionless on the keys. Is this what we want to do? What are we hoping to find out? Why am I thinking, “how bad will it be?” Why her? Will she be okay? What will her life be like? All the questions that you may have wistfully imagined answers to while watching the sunrise now cascaded in search of answers in front of a monitor. The idea of finding out as frightening as not knowing."
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CLAPA40 | Parent Stories | Volunteering Stories | Your Stories |
Amelia’s Story
Amelia is part of CLAPA's Board of Trustees. Our Trustees are a small group of volunteers who take responsibility for governing CLAPA as a charity and directing how it is managed and run. CLAPA's staff look after the charity's day-to-day work, but our Board of Trustees ensures everything we do is governed and directed by the cleft community.
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Children & Young People's Council | Children & Young People's Stories |
Aleisha Inspires UK to #DoMoreGood
10-year-old Aleisha has been chosen to represent CLAPA at this year's CarFest, the family festival created by radio presenter Chris Evans.
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Patient Voices | Research | Research Advertisements | Research Summaries | Volunteering Opportunities |
A Day at the Cleft Collective
On Saturday 23rd March, The Cleft Collective welcomed CLAPA’s Cleft Collective Patient Consultation Group to Bristol for a day of presentations and discussions around the next phase of this exciting initiative.
