Tagged with:Research Summaries
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CLAPA’s Response to ‘Timing of Cleft Palate Surgery’ Article
An article in the New England Journal of Medicine has reported that speech outcomes are better for babies who have their palate repair surgery at six rather than 12 months old. After speaking to clinicians about this, CLAPA wishes to share our response.
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Patient Involvement Updates
The latest research and patient involvement updates from CLAPA.
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Annual Survey 2022: The Results
Open up for a summary of our 2022 annual survey results, covering topics from access to NHS cleft care to what people value about CLAPA's events.
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Summer Survey 2021: The Results
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Research Summary: Treatment Decision Making in Adults with Cleft
This article summarises the results of a new paper on treatment decision making in adults who were born with a cleft, covering adults’ surgical experiences, feelings and concerns with dental care, desire for further treatment, and awareness of entitlement to NHS services.
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Research Summary: Parents’ & carers’ experiences of children with appearance-affecting conditions
Back in July 2020, we advertised a Centre for Appearance Research (CAR) study on parents' and carers' experiences of children with appearance-altering conditions, such as cleft. We are excited to be able to share with you the findings of the study as summarised by CAR.
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Research Summary: Interpersonal Relationships in Adults with Cleft
CLAPA's 'Whole of Life' survey in 2018 asked adults in the UK who were born with a cleft all about their experiences, including the impact of their cleft on their personal relationships. This paper looks at the results of this survey in detail and considers what the findings might mean for the UK cleft community.
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Summer Survey 2020: The Results
In July, we launched our 2020 Summer Survey which asked respondents about their general cleft-related concerns over the past few months, their experiences of remote cleft care, and finally about how we could support them both now and in the future. Since August, the results of this survey have been guiding our work and we're continuing to put plans in place to tackle some of the issues you've raised. In this report, we want to share some of these results and our plans with you.
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Research Summary: Emotional Wellbeing in Adults Born with a Cleft
CLAPA's 'Whole of Life' survey in 2018 asked adults born with a cleft from all over the UK about their experiences, including their emotional wellbeing. This paper looks at the results of this survey in detail and considers what they might mean for the future of our community.
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Research Summary: Visible Difference and Equality Law
Earlier this year, researcher Hannah Saunders interviewed a number of adults with a visible difference about their experiences in the workplace to learn more about if law does enough to promote the equality of people with a visible difference. Here, she presents a summary of her findings.
