Tagged with:Parent Stories
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Brooklyn’s Story
I remember going for my first scan; I was so excited to see my teeny little baby on the screen, but little did I know I would be told my baby would be born with a cleft lip and potentially a cleft palate too.
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Emma’s Poem for Sully
Emma has written a beautiful poem for her son Sully, who was diagnosed at 20 weeks with a cleft. We caught up with her and how they are finding the journey so far.
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Benjamin’s Story
Michelle's son Benjamin was born with a cleft palate. Michelle reflects on their journey so far, from diagnosis to surgery, and the challenges they overcame.
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Ashleigh, Brad and Arthur’s Story
From diagnosis to lip repair surgery and raising £2,500 for CLAPA, Ashleigh reflects on Arthur's cleft journey so far and hopes for a world where more people are cleft aware.
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Rebecca and Nina’s Story
Any parent or carer in the cleft community will have vivid memories of their child’s cleft surgeries, as well as all the worries that these bring. One year on from her daughter’s cleft palate repair surgery, Rebecca remembers the lead up to the operation as well as the unique stresses brought on by the Coronavirus pandemic.
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Rebecca, Darren and Mason’s story
Throughout their son's cleft journey so far, Rebecca and Darren have received support from CLAPA, as well as healthcare professionals and their family and friends. They wanted to give back and recently set up a Facebook Fundraiser to support our work, raising a phenomenal £1035! Here’s their story.
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Georgia’s Story
Georgia's sons, Theo and Jude, were both born with a cleft, 6 years apart. In this powerful piece, Georgia looks back on her experiences of diagnosis, feeding and surgery, hoping to reassure other parents and carers who might be going through similar experiences.
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Helen’s Story
Helen, who is now 89, has been supporting CLAPA with our Christmas cards for years. She reflected back on her experiences as a parent of a child who was born with a cleft palate, and has kindly shared her story with us.
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Poppy’s Story
10 year old Poppy, who was born with a cleft and Pierre Robin Sequence, recently placed 4th in the English School Nationals for running! She is sharing her story to inspire others to follow their dreams and do what they love.
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Clare’s Story
After Clare's daughter, Sophie, was diagnosed with Pierre Robin Sequence and a cleft palate, Clare turned to the CLAPA website for information and support. Her family have recently raised an incredible £448 for CLAPA with a socially distanced cake sale!
