Tagged with:Parent Stories

  • Luke’s World

    12 May 2016

    "Our little treasure arrived on Thursday 7th March 1996 weighing a healthy 7lb 13oz! Dad helped to deliver and was there to see that Luke was that extra bit special. I remember him being placed on my tummy and saying “aaww look…he has a cleft lip”. His Dad just said “I know kiddo…but we’ll be alright”."

  • Amanda and Amy’s Story

    11 May 2016

    It was a complete shock to us as anomaly scans were not available then and I felt to be honest, extremely isolated and lonely as I really didn’t have any support from anyone except the hospital staff and of course my family and friends at that time. It also felt really scary.

  • Elizabeth’s Story

    10 May 2016

    "I remember when I went to see Isaac in recovery and didn’t know what to expect and I was terrified but after a few hours he was even trying to smile and I feel in love with him all over again. Although to this day, I will always miss his wonderful cleft smile."

  • Katie’s Story

    10 May 2016

    "Cody has had his first surgery and although we miss his wide smile we are head over heels in love with his newest look. We really enjoyed the walk at the weekend and look forward to more events in the future."

  • Jasper’s Story

    10 May 2016

    "I knew what a cleft lip was, and I love all things quirky and unique and I knew that he would be beautiful no matter what. In the grand scheme of things, it wasn't anything life threatening, it could have been a hell of a lot worse."

  • Things Can Only Get Better

    6 Apr 2016

    From the first contact, CLAPA have supported me giving me advice and reassurance through my ante-natal tests, the birth, the many appointments and subsequent surgeries my baby had to undergo and the difficult learning curve of feeding a cleft baby. I don’t think I could have got through it without them and I know my son, now an adult, still enjoys interacting with the CLAPA community via social media.

  • Scott’s Story

    13 Mar 2015

    Scott was born with a cleft lip and palate. His very proud mum has written about the first 24 years of his life to celebrate Scott graduating from medical school

  • Joanne’s Story

    1 Aug 2014

    I'm Joanne Graham, married to Alex and have 2 beautiful sons; Noah, 2 and Isaac, who was born on 1st July 2014 with a unilateral cleft lip and gum notch. We live in South Shields, near Newcastle upon Tyne.

  • Maz and her two children

    Maz Poole’s Story

    9 Jul 2014

    Find out about Maz Poole's experiences as the Norfolk and Suffolk Happy Faces Coordinator and a CLAPA Parent Contact.

  • Lily’s Journey

    18 May 2014

    Over the next couple of weeks we learned more about the condition and how to handle our baby confidently and then the shock question came! Which one of us parents would insert the NPA tube and feeding tube when Lily goes home?