Tagged with:Parent Stories

  • Kayleigh’s Story

    14 Sep 2018

    "The truth is you never really know what your baby will look like until they are placed in your arms. I’m not going to sit here and lie, I was nervous about seeing her for the first time, but I had nothing to worry about. She was and still is absolutely perfect, cleft lip, cleft palate and gum notch included, this little girl was amazing, and I fell in love with her and her perfect imperfection instantly."

  • Ben’s Story

    15 Jun 2018

    Ben's dad, Mark, got in touch with CLAPA to share how proud he is of his son, who was born with a cleft lip and palate in 2001.

  • “Sometimes it is just nice to know you are not alone.”

    13 Jun 2018

    One mum got in touch with CLAPA to share the story of her and her baby's diagnosis, and to highlight the importance of knowing you're not alone when you or a loved one is affected by cleft.

  • Laura’s Story

    12 Jun 2018

    As her son approaches his teens, Laura remembers her pregnancy and looks back on some of the challenges he has faced and considers what's still to come.

  • Fliss’ Story

    11 Jun 2018

    Following the birth of her wonderful little boy, Fliss wrote an open letter to share though CLAPA, to help other expectant parents feel supported and reassured.

  • Becky and George’s Story

    11 Jun 2018

    Our beautiful Lottie was diagnosed with a bilateral cleft lip and palate at our 20 week scan. This was a huge shock for both me and George, as this wasn't something we ever thought about or expected to hear. From that day on, we received loads of support and help from family and friends, and also from CLAPA through all the information they share and through other families' experiences and stories.

  • Emma and Pip’s Story

    8 Jun 2018

    For me personally, CLAPA helped me face my fears. The reassurance from other mummies that had been through exactly what I was experiencing helped me to deal with so many different emotions that were spinning around in my head - Was it my fault? Had I harmed my unborn baby? What had I done wrong? How could I have changed this? Would I be able to cope? Would we bond? - The list was endless.

  • Jemma and Casper’s Story

    6 Jun 2018

    As Caspar's first birthday approaches, Jemma reflects on the past year, and on her and Casper's journey ahead.

  • Awareness Week 2018: Shirley-ann and Beth’s story

    10 May 2018

    Speaking to Beth, now ten-years-old, it’s clear that being born with a cleft has not held her back. She speaks cheerfully about school and is excited to tell her story. “I’m fine to talk about it at school if people ask,” she explains. “I don’t worry about explaining everything. I just tell them ‘this is something I was born with’.”

  • Awareness Week 2018: Hannah’s Story

    7 May 2018

    In the corner of the room with all the machines of tiny babies beeping, the nurses chatting in the background, the only people in the room are me and my amazing little boy.