Tagged with: Parent Stories

  • Clare’s Story

    16 Jun 2020

    After Clare's daughter, Sophie, was diagnosed with Pierre Robin Sequence and a cleft palate, Clare turned to the CLAPA website for information and support. Her family have recently raised an incredible £448 for CLAPA with a socially distanced cake sale!

  • Eleanor’s Volunteer Story

    2 Jun 2020

    This Volunteers' Week, we are celebrating our dedicated volunteers. Without them, so much of our work would simply not be possible. Eleanor is one of our fantastic Parent Supporters, and here's her story.

  • Sophie and Alfie’s Challenge

    26 May 2020

    During Awareness Week, Sophie and her son Alfie raised over £1,000 for CLAPA! Sophie told us about their incredible fundraising and has kindly shared her family's story so far.

  • Sarah, Dave and Sean’s challenge for CLAPA

    19 May 2020

    Sarah's daughter Alice was born with a cleft lip and palate. Sarah looks back at their journey so far and tells us about some of the incredible ways her and her family have fundraised for CLAPA over the last two years.

  • Teddy’s Triathlon for CLAPA

    12 May 2020

    7 year-old Teddy's little sister was born with Pierre Robin Sequence and a cleft palate. Teddy wanted to do something to help, so to mark the start of Awareness Week he completed a triathlon for CLAPA!

  • Kayleigh’s Story: an update!

    21 Mar 2020

    Though my first thoughts when I found out about Sydney having a cleft were very mixed, I now couldn’t be any prouder if I tried. I had nothing to worry about, my little girl is amazing, she’s full of sass and confidence and I hope she stays this way!

  • Anneka and Aria’s story

    13 Jan 2020

    Anneka's daughter Aria was born with Pierre Robin Syndrome. Now that Aria is two years old, Anneka reflects on their journey and has a strong message for other parents: 'please know it gets better'.

  • Joanna and Harry’s story

    2 Dec 2019

    Joanna's son Harry was diagnosed with a Cleft Lip and Palate when she was pregnant in 2009. Joanna recently got in touch with CLAPA to share their story, and looks back at Harry's resilience and determination over the years. She says, 'He knows he’s not alone. He knows he’s in the 1 in 700 club!'

  • Amelia’s Story

    7 Jun 2019

    Amelia is part of CLAPA's Board of Trustees. Our Trustees are a small group of volunteers who take responsibility for governing CLAPA as a charity and directing how it is managed and run. CLAPA's staff look after the charity's day-to-day work, but our Board of Trustees ensures everything we do is governed and directed by the cleft community.

  • #MyCleftStory a year on, through the eyes of Casper’s mummy

    8 May 2019

    "What did that mean?  Did that mean Casper would need more palate surgery?  Did that mean Casper’s speech would still not develop?  Again, I was overwhelmed and hit by a pang of too many emotions and my role of mummy being tested." In honour of Awareness Week, Jemma shared with CLAPA her experiences with her son, Casper over the past year.