Tagged with:Parent Stories

  • Black and white photo of a baby with a unilateral cleft lip, flying on a furry blanket and wearing a white shirt and suspenders.

    Rebecca, Darren and Mason’s story

    26 Mar 2021

    Throughout their son's cleft journey so far, Rebecca and Darren have received support from CLAPA, as well as healthcare professionals and their family and friends. They wanted to give back and recently set up a Facebook Fundraiser to support our work, raising a phenomenal £1035! Here’s their story.

  • Georgia’s Story

    15 Jan 2021

    Georgia's sons, Theo and Jude, were both born with a cleft, 6 years apart. In this powerful piece, Georgia looks back on her experiences of diagnosis, feeding and surgery, hoping to reassure other parents and carers who might be going through similar experiences.

  • A black and white photo of Helen, wearing a smart dress, heels and a hat, sitting on a chair holding baby Sean who wears a long white Christening robe. A man dressed in a suit crouches next to the chair.

    Helen’s Story

    19 Nov 2020

    Helen, who is now 89, has been supporting CLAPA with our Christmas cards for years. She reflected back on her experiences as a parent of a child who was born with a cleft palate, and has kindly shared her story with us.

  • Poppy’s Story

    12 Nov 2020

    10 year old Poppy, who was born with a cleft and Pierre Robin Sequence, recently placed 4th in the English School Nationals for running! She is sharing her story to inspire others to follow their dreams and do what they love.

  • Clare’s Story

    16 Jun 2020

    After Clare's daughter, Sophie, was diagnosed with Pierre Robin Sequence and a cleft palate, Clare turned to the CLAPA website for information and support. Her family have recently raised an incredible £448 for CLAPA with a socially distanced cake sale!

  • Eleanor’s Volunteer Story

    2 Jun 2020

    This Volunteers' Week, we are celebrating our dedicated volunteers. Without them, so much of our work would simply not be possible. Eleanor is one of our fantastic Parent Supporters, and here's her story.

  • Sophie and Alfie’s Challenge

    26 May 2020

    During Awareness Week, Sophie and her son Alfie raised over £1,000 for CLAPA! Sophie told us about their incredible fundraising and has kindly shared her family's story so far.

  • Sarah, Dave and Sean’s challenge for CLAPA

    19 May 2020

    Sarah's daughter Alice was born with a cleft lip and palate. Sarah looks back at their journey so far and tells us about some of the incredible ways her and her family have fundraised for CLAPA over the last two years.

  • Teddy’s Triathlon for CLAPA

    12 May 2020

    7 year-old Teddy's little sister was born with Pierre Robin Sequence and a cleft palate. Teddy wanted to do something to help, so to mark the start of Awareness Week he completed a triathlon for CLAPA!

  • Kayleigh’s Story: an update!

    21 Mar 2020

    Though my first thoughts when I found out about Sydney having a cleft were very mixed, I now couldn’t be any prouder if I tried. I had nothing to worry about, my little girl is amazing, she’s full of sass and confidence and I hope she stays this way!