Tagged with:Parent Stories

  • “Sometimes it is just nice to know you are not alone.”

    13 Jun 2018

    One mum got in touch with CLAPA to share the story of her and her baby's diagnosis, and to highlight the importance of knowing you're not alone when you or a loved one is affected by cleft.

  • Laura’s Story

    12 Jun 2018

    As her son approaches his teens, Laura remembers her pregnancy and looks back on some of the challenges he has faced and considers what's still to come.

  • Fliss’ Story

    11 Jun 2018

    Following the birth of her wonderful little boy, Fliss wrote an open letter to share though CLAPA, to help other expectant parents feel supported and reassured.

  • Becky and George’s Story

    11 Jun 2018

    Our beautiful Lottie was diagnosed with a bilateral cleft lip and palate at our 20 week scan. This was a huge shock for both me and George, as this wasn't something we ever thought about or expected to hear. From that day on, we received loads of support and help from family and friends, and also from CLAPA through all the information they share and through other families' experiences and stories.

  • Emma and Pip’s Story

    8 Jun 2018

    For me personally, CLAPA helped me face my fears. The reassurance from other mummies that had been through exactly what I was experiencing helped me to deal with so many different emotions that were spinning around in my head - Was it my fault? Had I harmed my unborn baby? What had I done wrong? How could I have changed this? Would I be able to cope? Would we bond? - The list was endless.

  • Jemma and Casper’s Story

    6 Jun 2018

    As Caspar's first birthday approaches, Jemma reflects on the past year, and on her and Casper's journey ahead.

  • Awareness Week 2018: Shirley-ann and Beth’s story

    10 May 2018

    Speaking to Beth, now ten-years-old, it’s clear that being born with a cleft has not held her back. She speaks cheerfully about school and is excited to tell her story. “I’m fine to talk about it at school if people ask,” she explains. “I don’t worry about explaining everything. I just tell them ‘this is something I was born with’.”

  • Awareness Week 2018: Hannah’s Story

    7 May 2018

    In the corner of the room with all the machines of tiny babies beeping, the nurses chatting in the background, the only people in the room are me and my amazing little boy.

  • Awareness Week 2018: Louise’s Story

    4 May 2018

    My husband and close family were amazing and were such a good support network, but nothing could help with my worrying. I hated my pregnancy, hated everything about it. I couldn't get excited about anything...I was very worried what others were going to think and whether they would blame us. I couldn’t tell anyone how I truly felt as I didn't think anyone understood.

  • #FundraisingFriday: Kyle’s Fundraising Story

    13 Mar 2018

    From Day 1 of finding out, at my partners 20 week scan, that our son had a cleft lip and possible pallet, CLAPA have been there to guide and support us through the unknown. As a family we could not thank the CLAPA team enough. That's why I decided, once my beautiful son was born, that it was time to give something back.