News and updates from across every CLAPA region

  • Grandparents | Research | Research Summaries |

    The Psychosocial Impact of Cleft on Grandparents

    3 Jun 2019

    The aim of this study was to explore the experiences and potential support needs of grandparents of children born with CL/P to inform future service provision.

  • CLAPA40 | Updates from CLAPA |

    CLAPA Turns 40

    31 May 2019

    CLAPA has come a long way since that inaugural meeting, but we’ve remained committed to our founding principles of partnership, peer support and community. During June we’ll be publishing a series of interviews with people from CLAPA’s history who have had a major role in shaping the charity as we know it today. This week, we’ll be starting with some of our existing volunteers to get their view on how things have changed and what their hopes are for the future of CLAPA.

  • Adult Stories | CLAPA40 | Volunteering Stories | Your Stories |

    Oliver’s Story!

    31 May 2019

    “I hadn’t thought about CLAPA in years,” Oliver admits. “I used to go to the Christmas parties when I was younger and I had really nice memories of them which came back when I saw the logo, they were fun parties.” CLAPA Trustee Oliver shares his story ahead of CLAPA's 40th birthday.

  • Adult Issues |

    Adult Services Project: An Update

    31 May 2019

    Don’t let the name fool you, the Adults Services Programme is still down with the kids. Starting this month, we’re trying an innovative new way of delivering information - online panel discussions!

  • Vacancies |

    (CLOSED) VACANCY: Interim Fundraising Manager

    17 May 2019

    With CLAPA’s current Head of Fundraising taking on the role of Interim CEO as our Chief Executive goes off on maternity leave in August, we are seeking a confident and experienced candidate to cover the position of Interim Fundraising Manager.  This role will be a key part of our busy office-based team in London, and will manage our fundraising programme.

  • Cleft Lip and Palate | Parent Stories | Your Stories |

    #MyCleftStory a year on, through the eyes of Casper’s mummy

    8 May 2019

    "What did that mean?  Did that mean Casper would need more palate surgery?  Did that mean Casper’s speech would still not develop?  Again, I was overwhelmed and hit by a pang of too many emotions and my role of mummy being tested." In honour of Awareness Week, Jemma shared with CLAPA her experiences with her son, Casper over the past year.

  • Adult Issues | Adult Stories | Cleft Lip and Palate | Your Stories |

    Denise’s Story

    7 May 2019

    All the treatment was being geared up towards the operation to close Kenny’s cleft lip at 3 months of age. Initially, that operation couldn’t come quick enough, but by the time he was 3 months old, I’d grown accustomed to how he looked and was a bit fearful of the change. Our son was a smiley, happy, very content baby. It seemed wrong that he had to go through this.

  • NHS Cleft Services | PRS |

    Pierre Robin Sequence Study for Trent Region Families

    7 May 2019

    The Nottingham-based Trent Cleft Service are putting together a set of resources for families affected by Pierre Robin Sequence. Can you help them by completing a short online survey?

  • Young People |

    CLAPA Kids’ Sunshine Club: LAUNCH PARTY!

    2 May 2019

    CLAPA Kids' Sunshine Club has been created by seven-year-olds Sophie Mae Ria and eight-year-old Macey — along with the help of a few family and friends. They're hoping to meet lots of other children affected by cleft and their families at their special launch event and family fun day on Saturday 18th May 2019.

  • Children & Young People's Council | Children & Young People's Stories |

    Aleisha Inspires UK to #DoMoreGood

    24 Apr 2019

    10-year-old Aleisha has been chosen to represent CLAPA at this year's CarFest, the family festival created by radio presenter Chris Evans.