News
News and updates from across every CLAPA region
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Great Ormond Street Hospital Branch |
CLAPA GOSH Fundraising
CLAPA GOSH Chair and CLAPA’s Volunteer Development Officer, Chris, will be taking on the London to Brighton 100KM (64 Miles) Challenge on the 28th May in aid of CLAPA!
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CLAPA Conference |
CLAPA Conference 2016 – An Announcement
This year, we will not be holding a CLAPA National Conference in the autumn. Read on to find out more about what we have planned instead.
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CLAPA Blogs | Volunteering Opportunities | Your Stories |
ICHOM 2016 – A Patient’s Perspective
The ICHOM are an organisation aiming to standardise the ways we measure outcomes for health conditions around the world, including cleft lip and palate. Our very own Chris Williams represented cleft and CLAPA at their latest conference, and here he blogs about what he took away from the experience.
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Thank You!
May 7th – 14th saw a very special Awareness Week taking over our website and social media feeds, just as CLAPA t-shirts and banners took over parks and cities all over the UK!
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Fundraising Stories |
#FundraisingFriday: Wales
We’re celebrating all the fantastic fundraisers working hard all across the UK for Awareness Week.
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Fundraising Stories | Fundraising: Community |
#FundraisingFriday: Leanne and Friends
Huge thanks to Leanne and friends in Kent for organising a fabulous fun day this Sunday in Ashford, Kent!
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Parent Stories | Your Stories |
Luke’s World
"Our little treasure arrived on Thursday 7th March 1996 weighing a healthy 7lb 13oz! Dad helped to deliver and was there to see that Luke was that extra bit special. I remember him being placed on my tummy and saying “aaww look…he has a cleft lip”. His Dad just said “I know kiddo…but we’ll be alright”."
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What does the CLAPA Community mean to you?
For today's Awareness Week challenge, we want to know what being in the CLAPA Community means to YOU. Is it a listening ear on the end of the phone or an uplifting comment on a Facebook group? Is it new friends or a new cause to support? Is it just knowing that there are so many people around the country who know how you feel?
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Parent Stories | Your Stories |
Amanda and Amy’s Story
It was a complete shock to us as anomaly scans were not available then and I felt to be honest, extremely isolated and lonely as I really didn’t have any support from anyone except the hospital staff and of course my family and friends at that time. It also felt really scary.
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Parent Stories | Your Stories |
Elizabeth’s Story
"I remember when I went to see Isaac in recovery and didn’t know what to expect and I was terrified but after a few hours he was even trying to smile and I feel in love with him all over again. Although to this day, I will always miss his wonderful cleft smile."
