CLAPA runs regular surveys of our community so we can make sure everything we do is based on the needs of people in the UK affected by cleft lip and/or palate.
Here you can find information on some of our past surveys, including reports on the results.
Diagnosis – 2016-17
CLAPA’s latest survey was all about parents’ experiences of diagnosis. This survey has now closed with over 1,200 responses.
These results have fed into three scientific papers which are being published later in 2018. Make sure you join our community to hear more about this.
Five Years On – 2015
This survey followed on from a similar questionnaire sent out in 2010 which fed directly into our strategy at the time. It looked at the kinds of services our community wanted to see from CLAPA and how they responded to our work so far.
This survey is currently being used to help us write our strategy for the next few years.
Spring Survey – 2014
In this survey, we wanted to get a ‘snapshot’ of our community’s opinions by asking short questions about a wide range of topics – everything from diagnosis through to returning to treatment as an adult!
We have two available reports: