CLAPA runs regular surveys of our community so we can make sure everything we do is based on the needs of people in the UK affected by cleft lip and/or palate.

Here you can find information on some of our past surveys, including reports on the results.

You are free to use these statistics for academic or media purposes. Contact CLAPA for more information, or see our Press & Media page.

Diagnosis – 2016

CLAPA’s latest survey is all about parents’ experiences of diagnosis. We are hoping the results will feed into a wider campaign around this topic in 2017/18.

Five Years On – 2015

This survey followed on from a similar questionnaire sent out in 2010 which fed directly into our strategy at the time. It looked at the kinds of services our community wanted to see from CLAPA and how they responded to our work so far.

This survey is currently being used to help us write our strategy for the next few years.

Report – PDF

Spring Survey – 2014

In this survey, we wanted to get a ‘snapshot’ of our community’s opinions by asking short questions about a wide range of topics – everything from diagnosis through to returning to treatment as an adult!

We have two available reports:

Adults with a cleft – PDF

Parents & Carers – PDF



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