Tagged with: Adult Stories

  • David’s Story

    6 Aug 2018

    As well as getting in touch about becoming a CLAPA Volunteer, David’s been kind enough to share his story in this interview, in the hope it will share some of his positivity with others in the UK Cleft Community.

  • #NHS70: Pat’s Story

    4 Jul 2018

    Pat was born in 1954 with a cleft lip and palate. She is currently a Cleft Nurse Specialist at the Birmingham Children’s’ Hospital. In this interview to celebrate the 70th anniversary of the NHS, she offers insight into the changes in cleft care over the years that she has experienced as both a patient and a professional.

  • Rebecca’s Story

    12 Jun 2018

    Rebecca got in touch with CLAPA to share her experience of growing up with a cleft palate, which was undiagnosed until she was 3 years old.

  • Stavroulla’s Story

    6 Jun 2018

    "Why does your lip have a funny shape?" The question got me thinking, mostly about my smile and myself. I found it intriguing how a child’s brain works, as there’s no filter. Of course the question took me aback, but I simply answered as best I could with a reply of ‘everyone is born differently, these differences are what makes us unique and special’.

  • Paul’s Story

    4 Jun 2018

    Now as an adult I can go a couple of years without even giving my cleft a passing thought. Yes, it is a part of who I am - but only a small part. I am a person with a cleft lip. But I am also a person with two amazing children. I am also a person who cycles, who plays badminton, who develops websites, who is very tall, who is an only child, who sings in a choir. No one thing defines me.

  • Georgina’s Story

    31 May 2018

    Overall, I’ve found growing up with a cleft lip and gum difficult. I’ve felt really down and insecure about it at times. However I’ve realised it’s OK to be different. I don’t need a smaller nose or perfect shaped lips to be happy. I’ve become more accepting of myself and my scars. I’m trying to stop hiding behind makeup and my bad habit of covering my mouth when talking to people. I’m trying to love myself for the way I am.

  • Keeley’s Story

    4 Apr 2018

    As soon as I was born I was whisked away from my parents...I had something “wrong” with my lip. My dad (who had himself been born with a cleft lip in 1955) asked if I had a cleft lip. The nurse nodded and my dad just asked if he could hold me. The nurse noticed my dad’s scars and realised he understood exactly what was going on.

  • Viktoria’s Story

    14 Mar 2018

    I was bullied at primary school and the other students would tease me about my cleft, or ask lots of questions. As I got older, I learned not to take it personally and overcame other people’s reactions. I started to see it as curiosity as I became more comfortable in my own skin.

  • Dave Z’s Story

    8 Mar 2018

    My name is Dave Z. I was recently asked by the Cleft Lip & Palate association (CLAPA) to share my story about growing up and dealing with the issues surrounding the condition. At first I was unsure whether to go for it as its not something I usually talk about, If anything I try to avoid thinking about it.

  • Michael’s Story

    7 Jan 2018

    I was born in the Netherlands in September 1998 with a severe bilateral Cleft Lip and Palate. Compared to the UK, there are a much lower percentage of babies born with a cleft in the Netherlands. Mine was one of the more severe cases.