Dr Karine Latter from the Trent Cleft Service would like to invite parents of children with Pierre Robin Sequence (PRS) living in the Trent region to fill in an anonymous online survey.
The responses will be used to help develop a resource of information about PRS which can be downloaded to a phone, tablet or computer after diagnosis. To find out more, please read the Patient Information Sheet.
There is also a one day focus group to be held at the University of Nottingham, which you can opt into if you wish. Please contact Karine if you would like further details or to take part in the study.
[email protected] or 07812275298