The Nottingham-based Trent Cleft Service are putting together a set of resources for families affected by Pierre Robin Sequence. Can you help them by completing a short online survey?
Yin Jones is one of CLAPA's Board of Trustees, and a mother of 4 year old Hannah who was born with a cleft palate and Pierre Robin Sequence. Yin is a Parent Contact and was the Chair of the Great Ormond Street Hospital Branch. Here she writes about her experience of the second ever international Pierre Robin Sequence conference.