Tagged with:PRS

  • Pierre Robin Sequence Study for Trent Region Families

    7 May 2019

    The Nottingham-based Trent Cleft Service are putting together a set of resources for families affected by Pierre Robin Sequence. Can you help them by completing a short online survey?

  • International Pierre Robin Sequence Conference

    31 May 2017

    Yin Jones is one of CLAPA's Board of Trustees, and a mother of 4 year old Hannah who was born with a cleft palate and Pierre Robin Sequence. Yin is a Parent Contact and was the Chair of the Great Ormond Street Hospital Branch. Here she writes about her experience of the second ever international Pierre Robin Sequence conference.