News
News and updates from across every CLAPA region
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Fundraising Stories | Fundraising: Challenges |
Laura and Mark’s Cycle for CLAPA
Laura and Mark wanted to do something for their godsons, Isaac and Jacob, who were both born with a cleft. The couple decided to put their leisurely lockdown bike rides to the test with a huge 362km cycle ride challenge, raising an incredible £3,045 for CLAPA in the process! We caught up with them to say a huge thank you and to find out more.
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Cleft Lip | Research | Research Advertisements |
Research Opportunity: Parents of babies born in lockdown
Was your baby born with a cleft lip in the period just before or during the UK Lockdown? Researchers at the Centre for Appearance Research (CAR) would like to hear from you!
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Adult Issues | Research |
Research Summary: Physical Wellbeing in Adults Born with a Cleft
CLAPA's 'Whole of Life' survey in 2018 asked adults born with a cleft from all over the UK about their experiences, including their physical wellbeing. This paper looks at the results of this survey in detail and considers what they might mean for the future of our community.
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Research | Research Advertisements |
Research Opportunity: ‘ACT It Out’ app for adults ready for testing
'ACT It Out' is a prototype app designed to help adults (18+) who have any different or unusual appearance live a fulfilling life by doing more of what matters to you and reducing the impact of appearance concerns. It's now ready for testing - could you help by giving your views?
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Research | Research Advertisements |
Research Opportunity: Parents’ & carers’ experiences of children with appearance-affecting conditions
A new research project is investigating ways to support parents and carers of children and young people affected by appearance affecting conditions/injuries, such cleft lip.
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NHS Cleft Services | Updates from CLAPA |
Summer Survey 2020: Now Closed
Are you personally affected by cleft? Could you take 10 minutes to help us better support the UK cleft community by telling us how the lockdown has affected you?
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Fundraising: Trusts & Foundations | Press Release | Updates from CLAPA |
Cash boost for CLAPA
Today, we are delighted to announce CLAPA has been awarded £10,000 of emergency funding, which will help us to continue meeting the needs of the cleft community.
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Research | Research Advertisements |
Research Opportunity: Parents Experiences of Decision-Making About Orthognathic Surgery
A researcher with the University of East Anglia is hoping to interview parents of those who have undergone orthognatic surgery, also called 'jaw surgery' or an 'osteotomy'. This is to learn more about how parents experience the decision-making process around this surgery, with the hopes that it will feed into the NHS treatment pathway.
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Adult Stories | Your Stories |
Susan’s story
Following an unsuccessful surgery when she was very young, Susan attempted to have her cleft palate repaired by surgeons many times throughout her life. It wasn't until she was in her 40s when this finally happened. Here's her incredible story.
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NHS Cleft Services |
Resumption of Cleft Services
The Cleft Development Group (CDG) has passed on the following statement for the UK cleft community on how the NHS plans to safely resume cleft services during the coronavirus pandemic.
