Tagged with:Your Stories

  • Clare’s Story

    16 Jun 2020

    After Clare's daughter, Sophie, was diagnosed with Pierre Robin Sequence and a cleft palate, Clare turned to the CLAPA website for information and support. Her family have recently raised an incredible £448 for CLAPA with a socially distanced cake sale!

  • Eleanor’s Volunteer Story

    2 Jun 2020

    This Volunteers' Week, we are celebrating our dedicated volunteers. Without them, so much of our work would simply not be possible. Eleanor is one of our fantastic Parent Supporters, and here's her story.

  • Sophie and Alfie’s Challenge

    26 May 2020

    During Awareness Week, Sophie and her son Alfie raised over £1,000 for CLAPA! Sophie told us about their incredible fundraising and has kindly shared her family's story so far.

  • Sarah, Dave and Sean’s challenge for CLAPA

    19 May 2020

    Sarah's daughter Alice was born with a cleft lip and palate. Sarah looks back at their journey so far and tells us about some of the incredible ways her and her family have fundraised for CLAPA over the last two years.

  • Jenny on beach in CLAPA hoodie

    Jenny’s 73 mile walk!

    15 May 2020

    Since she first got involved with CLAPA in 2012, Jenny has put out collection cans, organised cake sales and raffles, and has even worn a blue onesie at work to fundraise! We caught up with her to find out more about her most recent challenge for CLAPA.

  • Teddy’s Triathlon for CLAPA

    12 May 2020

    7 year-old Teddy's little sister was born with Pierre Robin Sequence and a cleft palate. Teddy wanted to do something to help, so to mark the start of Awareness Week he completed a triathlon for CLAPA!

  • Stav and Despina’s story

    7 May 2020

    Since meeting through CLAPA's Adult Voices Facebook group a few years ago, Stav and Despina have formed a formidable, powerful friendship. We are honoured to share their beautiful story this Awareness Week.

  • Kayleigh’s Story: an update!

    21 Mar 2020

    Though my first thoughts when I found out about Sydney having a cleft were very mixed, I now couldn’t be any prouder if I tried. I had nothing to worry about, my little girl is amazing, she’s full of sass and confidence and I hope she stays this way!

  • Izzie’s Story

    12 Mar 2020

    Keen gymnast Izzie decided to take on a 'Three Giants' challenge a few months ago to raise money for CLAPA! She raised an incredible £280 and we are so inspired by her determination. Here’s her story.

  • Anneka and Aria’s story

    13 Jan 2020

    Anneka's daughter Aria was born with Pierre Robin Syndrome. Now that Aria is two years old, Anneka reflects on their journey and has a strong message for other parents: 'please know it gets better'.