Tagged with: Your Stories

  • Rosie and Poppy’s Story

    24 Oct 2016

    I'm Rosie and have 2 beautiful children and this forms part of the reason why I am running the London marathon this year. I was lucky enough to get the only charity space with the Cleft Lip And Palate Association.

  • Nasima’s Story

    9 Oct 2016

    Growing up I was never made to feel different regardless of all the operations and constant hospital appointments – that was just my reality and I dealt with it. I genuinely believed that people had one big nostril and one smaller one! It never occurred to me that I looked or sounded different.

  • Dan’s Story

    28 Sep 2016

    It’s 2005 and I’m 18 years old. Currently, I’m an elevator with my family, leaving the hospital after surgery. I’ve had little-to-no sleep and (as a result of the dentofacial osteotomy) my jaws are wired shut. Almost spontaneously, I burst out crying.

  • #FundraisingFriday: Zoe’s Blog

    29 Jul 2016

    If you follow us on Twitter, you might remember us in the CLAPA office getting really excited following the story of 10 students and their teachers from Queen’s School Girls Chester, who cycled 120 miles, to raise over £1400 (and the figure’s still rising!) for CLAPA. This #FundraisingFriday we want to share Zoe’s fundraising journal with you.

  • Rachel’s Story

    8 Jul 2016

    It's the 9th March 2015, the day we have been waiting for. I had been induced two days prior due to high blood pressure, but today will be the day we meet our baby. The little baby we have been so desperately trying for for the past 3 years. We had our first child in 2010, a healthy (big) baby, Ella-Rose Corbin. She has been desperate to become a big sister for as long as I can remember; blowing out birthday candles wishing for a sibling that she could love, cuddle and feed. Today was going to be that day, except it's going to be a little different to how we had all imagined...

  • The Community’s Role in Research

    28 Jun 2016

    Our Children and Young People's Council do more than just play games and eat pizza - they also spend their meetings making a real difference to others born with a cleft like them! In a new video put together for the Appearance Matters 7 Conference, the CYPC share what CLAPA and its work means to them.

  • Father’s Day

    19 Jun 2016

    This Father’s Day we’re asking dads everywhere to share their stories of parenting a child with a cleft.

  • #FundraisingFriday: Leon Banks

    17 Jun 2016

    For this week’s #FundraisingFriday we really wanted to share this super cute story from Leon, who got in touch with a letter to tell us how he and his family chose to fundraise for CLAPA.

  • Charlotte’s Story

    10 Jun 2016

    "In 2014 my son Oliver was born with a cleft lip. This came as a massive shock to us as it was undiagnosed, and living on a small island Cleft awareness and guidance, even within our local hospital were not on hand. The hospital were not aware of any children born for many years with a cleft so it was paramount things needed to change."

  • How Volunteering Helps You Take Control

    9 Jun 2016

    Since becoming a CLAPA Volunteer in 2011, Rachel has been an outspoken advocate for improving care, awareness and research around cleft lip and palate in the UK. For the 9th day of #VolunteersWeek we're celebrating the ways in which volunteering can help you turn something difficult into an opportunity for growth and positivity by taking control of your situation.