Tagged with: Adult Stories

  • Keeley’s Story

    4 Apr 2018

    As soon as I was born I was whisked away from my parents...I had something “wrong” with my lip. My dad (who had himself been born with a cleft lip in 1955) asked if I had a cleft lip. The nurse nodded and my dad just asked if he could hold me. The nurse noticed my dad’s scars and realised he understood exactly what was going on.

  • Viktoria’s Story

    14 Mar 2018

    I was bullied at primary school and the other students would tease me about my cleft, or ask lots of questions. As I got older, I learned not to take it personally and overcame other people’s reactions. I started to see it as curiosity as I became more comfortable in my own skin.

  • Dave Z’s Story

    8 Mar 2018

    My name is Dave Z. I was recently asked by the Cleft Lip & Palate association (CLAPA) to share my story about growing up and dealing with the issues surrounding the condition. At first I was unsure whether to go for it as its not something I usually talk about, If anything I try to avoid thinking about it.

  • Michael’s Story

    7 Jan 2018

    I was born in the Netherlands in September 1998 with a severe bilateral Cleft Lip and Palate. Compared to the UK, there are a much lower percentage of babies born with a cleft in the Netherlands. Mine was one of the more severe cases.

  • Karen’s Story

    6 Jan 2018

    Karen was born in 1952 with a cleft lip and palate. Here in her own words she tells her story of growing up with a cleft, and returning to treatment as an adult.

  • CLAPA News 2017

    8 Dec 2017

    Welcome to our 28th annual magazine, packed full of stories and updates from all sectors of the CLAPA Community. Read it now online or order your paper copy.

  • Jenny’s Story

    6 Dec 2017

    I was born with a right unilateral cleft lip and palate in 1981 at King’s College Hospital in London. Back then, scans were not readily available, meaning my mum wasn’t aware that I was going to be born with a cleft. She told me that once that, when I was born and she held me, she noticed something on my lip thinking it was a bit of blood from the birth. She later realised it wasn’t that, but a cleft.

  • #FundraisingFriday – The Great North Swim

    30 Nov 2017

    "I was born with a cleft lip and palate myself and have been aware for many years of the great work that CLAPA performs. As CLAPA is a small charity, I felt the need to raise the profile (as well as donations) and bring awareness to the challenges faced by individuals with this condition."

  • Dan’s Story

    28 Sep 2016

    It’s 2005 and I’m 18 years old. Currently, I’m an elevator with my family, leaving the hospital after surgery. I’ve had little-to-no sleep and (as a result of the dentofacial osteotomy) my jaws are wired shut. Almost spontaneously, I burst out crying.

  • Can’t take my eyes off you

    16 Sep 2016

    OK, so let’s be honest, being stared at isn’t great and when someone stares, it is, above all, an invasion of privacy.