Joining the Cleft & Craniofacial Conditions Clinical Studies Group

December 18, 2017

Would you like to influence research into treatment for children with cleft and craniofacial conditions in the UK?

The Cleft & Craniofacial Conditions Clinical Studies Group is currently looking for Adult patient/Parent/Carer members.

The Cleft and Craniofacial Conditions CSG is funded by the Scar Free Foundation and the Craniofacial Society of Great Britain and Ireland. It focuses on supporting and developing research within the field of cleft lip and palate and other craniofacial conditions (such as craniosynostosis, Treacher Collins syndrome and craniofacial microsomia).

The group is currently seeking adults affected by cleft or other craniofacial conditions, as well as parents/carers of children affected by these conditions, to join its membership. The aim is to help to ensure that studies on treatments for children with cleft and other craniofacial conditions are developed and carried out to best meet the needs of children and families affected by these conditions.

The CSG are particularly interested in applications from people who fulfil the following criteria;

  • Personal experience of treatment for a cleft or other craniofacial condition, or experience of looking after a child with a cleft or other craniofacial condition.
  • The time to participate in two face to face meetings (in London) and one teleconference in between.
  • Excellent communication skills.
  • Experience of working in groups/committees.

Adults affected by cleft or other craniofacial conditions/parent/carer members of the CSG are entitled to an attendance fee and expenses for agreed meeting attendance.

The appointment is for three years in the first instance.

If you are interested in serving on the above CSG, please submit a short CV and covering letter, outlining how you meet the criteria listed above, to NIHR CRN: Children at [email protected] by January 31st 2018. It is advised that all candidates read the CSG brochure prior to submitting their applications. This along with further details regarding the NIHR CRN Children CSGs can be found at the NIHR website: https// Please note some documents at this link may refer to MCRN – please read this as NIHR CRN Children. Should you require any further information please do contact any of the CSG Members (see website) or Dr Vanessa Poustie, Assistant Specialty Lead for NIHR CRN Children ([email protected]).

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