Tagged with:Research Summaries
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CLAPA Presents at European Cleft Conference in Utrecht
Adult Services Coordinator Kenny Ardouin reports back on his time in Utrecht talking about CLAPA's Adult Services Project and learning from others who'd travelled from all around the world.
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The Psychosocial Impact of Cleft on Grandparents
The aim of this study was to explore the experiences and potential support needs of grandparents of children born with CL/P to inform future service provision.
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A Day at the Cleft Collective
On Saturday 23rd March, The Cleft Collective welcomed CLAPA’s Cleft Collective Patient Consultation Group to Bristol for a day of presentations and discussions around the next phase of this exciting initiative.
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Adults’ Project Roadshow Report
CLAPA ran 12 focus groups around the UK where adults born with a cleft shared their experiences, uncertainties and hopes for cleft treatment and support. Learn about what came up and what we plan to do next.
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CRANE Report 2017
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SLUMBERS – A Sleep Study
The Side Lying and Upper airway Maintenance in Babies Requiring Surgery for cleft palate, or SLUMBERS study, is a feasibility study that CLAPA has coordinated with frequently during the research process. The purpose of the study was to address the fact that general NHS guidelines for how babies can be put to bed to sleep most safely may not be the safest guidelines to follow for babies with a cleft lip and/or palate.
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Education and Cleft: Educational Impact Study 2017
Educational experiences contribute significantly to a young person’s development, both during the school years, and in the longer term. Qualitative research may help us to understand this relationship better, by exploring people’s experiences in depth.
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CLAPA News 2017
Welcome to our 28th annual magazine, packed full of stories and updates from all sectors of the CLAPA Community. Read it now online or order your paper copy.
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Cleft Care in the UK: Where Are We Now?
At the turn of the century, UK cleft services were centralised into the Cleft Teams we know today. Now, a new study reveals which treatment outcomes have improved since then - and which are still lagging behind.
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STUDY: What is considered most important when treating glue ear in children who also have a cleft palate?
The MOMENT study wanted to find out what outcomes of treatment for glue ear were most important to health care professionals and children with a cleft palate and their parents.