Tagged with: Research Summaries

  • A Day at the Cleft Collective

    4 Apr 2019

    On Saturday 23rd March, The Cleft Collective welcomed CLAPA’s Cleft Collective Patient Consultation Group to Bristol for a day of presentations and discussions around the next phase of this exciting initiative.

  • CRANE Report 2017

    4 Jul 2018

  • SLUMBERS – A Sleep Study

    20 Dec 2017

    The Side Lying and Upper airway Maintenance in Babies Requiring Surgery for cleft palate, or SLUMBERS study, is a feasibility study that CLAPA has coordinated with frequently during the research process.  The purpose of the study was to address the fact that general NHS guidelines for how babies can be put to bed to sleep most safely may not be the safest guidelines to follow for babies with a cleft lip and/or palate.

  • Education and Cleft: Educational Impact Study 2017

    13 Dec 2017

    Educational experiences contribute significantly to a young person’s development, both during the school years, and in the longer term. Qualitative research may help us to understand this relationship better, by exploring people’s experiences in depth.

  • CLAPA News 2017

    8 Dec 2017

    Welcome to our 28th annual magazine, packed full of stories and updates from all sectors of the CLAPA Community. Read it now online or order your paper copy.

  • Cleft Care in the UK: Where Are We Now?

    31 Oct 2017

    At the turn of the century, UK cleft services were centralised into the Cleft Teams we know today. Now, a new study reveals which treatment outcomes have improved since then - and which are still lagging behind.

  • STUDY: What is considered most important when treating glue ear in children who also have a cleft palate?

    28 Jan 2016

    The MOMENT study wanted to find out what outcomes of treatment for glue ear were most important to health care professionals and children with a cleft palate and their parents.

  • The Centralisation of Cleft Care – Has it Worked?

    21 Jan 2016

    A report has been published with the results of the Cleft Care UK study which looked at how things have changed since the introduction of specialist Cleft Teams at the turn of the century.

  • The psychosocial impact of cleft lip and/or palate on unaffected siblings

    5 Nov 2015

    Individual telephone interviews were conducted with five unaffected siblings and eight parents of children born with cleft lip and/or palate living in the UK, including five sibling-parent ‘pairs’ from the same families. This study demonstrates that unaffected siblings of children with CL/P may have information and support needs which are currently not being met.

  • Parenting a child with a cleft lip and/or palate: The father’s perspective

    5 Jun 2015

    The aim of this research was to explore the experience of having a child born with a cleft from the father’s perspective, with a view to informing service provision and future research.