Tagged with:Adult Issues

  • Research Summary: Emotional Wellbeing in Adults Born with a Cleft

    3 May 2020

    CLAPA's 'Whole of Life' survey in 2018 asked adults born with a cleft from all over the UK about their experiences, including their emotional wellbeing. This paper looks at the results of this survey in detail and considers what they might mean for the future of our community.

  • Research Opportunity: People with Nasal Speech

    18 Mar 2020

    A Speech and Language Therapist with Salisbury Cleft Team is helping to produce and evaluate a device called a 'nasal obturator' which is designed to help people with nasal speech.

  • Research Summary: Visible Difference and Equality Law

    14 Oct 2019

    Earlier this year, researcher Hannah Saunders interviewed a number of adults with a visible difference about their experiences in the workplace to learn more about if law does enough to promote the equality of people with a visible difference. Here, she presents a summary of her findings.

  • World Mental Health Day – 10 October

    10 Oct 2019

    Thursday 10th October is World Mental Health Day. To mark the occasion, CLAPA's Adult Services Manager, Kenny Ardouin, wrote about cleft and mental health, and what we can all do to keep ourselves and each other mentally well.

  • World Mental Health Day 2019

    10 Oct 2019

    Thursday 10th October 2019 is World Mental Health Day! We often only think and hear about mental health when we learn that somebody is experiencing mental ill health, but we all have mental health and it's important that we keep ourselves and each other mentally well as well as physically well. To mark World Mental Health Day, CLAPA's Adult Services Coordinator takes a look at what's available for the cleft community.

  • Sarah’s Story

    20 Sep 2019

    During those formative years, I was in and out of GOSH for surgical procedures, either on my bladder or to correct my facial differences. In 1982 I had some of some bone marrow taken from my hip and grafted into the gap left by the cleft.

  • CLAPA Presents at European Cleft Conference in Utrecht

    13 Aug 2019

    Adult Services Coordinator Kenny Ardouin reports back on his time in Utrecht talking about CLAPA's Adult Services Project and learning from others who'd travelled from all around the world.

  • Adult Services Project: An Update

    31 May 2019

    Don’t let the name fool you, the Adults Services Programme is still down with the kids. Starting this month, we’re trying an innovative new way of delivering information - online panel discussions!

  • Denise’s Story

    7 May 2019

    All the treatment was being geared up towards the operation to close Kenny’s cleft lip at 3 months of age. Initially, that operation couldn’t come quick enough, but by the time he was 3 months old, I’d grown accustomed to how he looked and was a bit fearful of the change. Our son was a smiley, happy, very content baby. It seemed wrong that he had to go through this.

  • Update: CLAPA’s Adults Project 2019

    21 Mar 2019

    CLAPA's Adult Services Coordinator, Kenny Ardouin has been working hard behind the scenes on the CLAPA Adults Project. We know you've been keen to hear what's planned for the rest of 2019, so here is a quick update from Kenny about the next stages of the project.