Tagged with:Adult Issues
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Research Summary: Treatment Decision Making in Adults with Cleft
This article summarises the results of a new paper on treatment decision making in adults who were born with a cleft, covering adults’ surgical experiences, feelings and concerns with dental care, desire for further treatment, and awareness of entitlement to NHS services.
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Research Summary: Interpersonal Relationships in Adults with Cleft
CLAPA's 'Whole of Life' survey in 2018 asked adults in the UK who were born with a cleft all about their experiences, including the impact of their cleft on their personal relationships. This paper looks at the results of this survey in detail and considers what the findings might mean for the UK cleft community.
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Research Summary: Physical Wellbeing in Adults Born with a Cleft
CLAPA's 'Whole of Life' survey in 2018 asked adults born with a cleft from all over the UK about their experiences, including their physical wellbeing. This paper looks at the results of this survey in detail and considers what they might mean for the future of our community.
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Research Summary: Emotional Wellbeing in Adults Born with a Cleft
CLAPA's 'Whole of Life' survey in 2018 asked adults born with a cleft from all over the UK about their experiences, including their emotional wellbeing. This paper looks at the results of this survey in detail and considers what they might mean for the future of our community.
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Research Opportunity: People with Nasal Speech
A Speech and Language Therapist with Salisbury Cleft Team is helping to produce and evaluate a device called a 'nasal obturator' which is designed to help people with nasal speech.
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Research Summary: Visible Difference and Equality Law
Earlier this year, researcher Hannah Saunders interviewed a number of adults with a visible difference about their experiences in the workplace to learn more about if law does enough to promote the equality of people with a visible difference. Here, she presents a summary of her findings.
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World Mental Health Day – 10 October
Thursday 10th October is World Mental Health Day. To mark the occasion, CLAPA's Adult Services Manager, Kenny Ardouin, wrote about cleft and mental health, and what we can all do to keep ourselves and each other mentally well.
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World Mental Health Day 2019
Thursday 10th October 2019 is World Mental Health Day! We often only think and hear about mental health when we learn that somebody is experiencing mental ill health, but we all have mental health and it's important that we keep ourselves and each other mentally well as well as physically well. To mark World Mental Health Day, CLAPA's Adult Services Coordinator takes a look at what's available for the cleft community.
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Sarah’s Story
During those formative years, I was in and out of GOSH for surgical procedures, either on my bladder or to correct my facial differences. In 1982 I had some of some bone marrow taken from my hip and grafted into the gap left by the cleft.
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CLAPA Presents at European Cleft Conference in Utrecht
Adult Services Coordinator Kenny Ardouin reports back on his time in Utrecht talking about CLAPA's Adult Services Project and learning from others who'd travelled from all around the world.
