News
News and updates from across every CLAPA region
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Research | Research Advertisements |
CLAPA Cleft Collective Patient Consultation Group
The Cleft Collective cohort studies recruit families of babies and children born with a cleft across the UK. Families who participate provide biological samples (such as saliva) and complete questionnaires about themselves and their children at different ages.
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Grandparents | Parent Stories |
Sue’s Story
Sue's grandaughter Jessica was born with a cleft lip. She shares their journey from a grandparent's point of view and the involvement she experienced with her family.
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Volunteering Opportunities |
New Opportunity: Children and Young People (CYP) Volunteer
Working with the Cleft Lip and Palate Association (CLAPA) as a CYP Volunteer you will be supporting adventure days and adventure weekends events for children and young people affected by cleft.
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Research | Research Advertisements |
New Membership Opportunity
The Cleft & Craniofacial Conditions CSG is currently seeking parents and carers to join its membership to help ensure that studies into these areas of specialty are developed and carried out to best meet the needs and wishes of children and young people and their families.
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Adult Stories | Parent Stories |
Nathan’s Story
Michelle's son Nathan was born with a cleft lip and palate. She shares how proud she is of him throughout his journey, from multiple surgeries and following his dream career.
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A letter from CLAPA’s Chief Executive
CLAPA's fundraising has not recovered from the pandemic. We need 250 new regular donors by Christmas to help us continue our work in 2023 and beyond. Will you become a CLAPA Champion?
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Parent Stories | Parents |
Jerry-Leigh’s Story
Charlie was diagnosed with a cleft lip & bilateral talipes at our 20-week scan; he measured a small head, which made professionals think there was more to it than what meets the eye.
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Parent Stories | Parents |
Theresa’s Story
I guess our story begins where most others do. We found out our baby has a unilateral cleft lip & palate at our 20-week anomaly scan. At first, Tom & I weren't really that bothered - we didn't know much about it; apart from that, it affected how a child looks and can be fixed.
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Parent Stories | Parents |
Rachael’s Story
Rachael's daughter Anya was born with a bilateral cleft lip and palate. Rachael reflects on their journey over the past year from diagnosis to lip repair surgery.
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Adult Stories |
Adrian’s Story
My earliest memories are as a young child, my yearly visits to St George's Hospital Hyde Park Corner. How nervous I felt waiting to be assessed by the surgery team, hoping there would be an all-clear outcome and dreading the prospect of another operation.
