Patient Voices Groups

What is a Patient Voices Group?

A Patient Voices Group brings together a range of people who can use their experiences of cleft services to represent the views of the cleft community, providing the patient perspective.

Patient Voices groups act as a point of contact between the local cleft community and the Cleft Service with the aim of maintaining and developing excellence in Cleft treatment and services.

How the Groups Usually Work

Patient Partnership Group for Cleft Net East
Patient Partnership Group for Cleft Net East

Group member meet to talk about their personal experiences, opinions and ideas. There could are also usually visits from the Cleft Team and other health professionals. Groups are run informally and meet in a relaxed space in either the Hospital or somewhere close by. They are made up of around eight patients and parents.

There are likely to be around four meetings a year and the groups are supported by the Regional Cleft Service and CLAPA’s Regional Coordinator or Volunteer Development Officer for the area.

Patient Voices Groups are currently active for the West Midlands Cleft Service and Cleft Net East (Addebrookes Hospital, Cambridge).

What’s in it for You?

  • Personal reward – see a positive change from your involvement
  • Meet others like you locally and learn new skills to add to your CV
  • Make a difference for people affected by cleft

Aims for the Future

CLAPA aims to work with each of the eleven Cleft Centres across the UK to ensure that there is a minimum of two patient representatives and even better, a Patient Voices group attached to each.

Interested in Getting Involved?

Contact your Volunteer Development Officer or Regional Coordinator. See the Staff Page for contact details.

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