I'm the mother of twin boys born two months prematurely in 1997 in the USA. My husband David and I moved to Sheffield when the boys were 10 months old. Ben was born with a cleft of the hard and soft palate and Van der Woude syndrome. Killian was diagnosed with pyloric stenosis at about 6 months so both of my boys had extensive feeding issues.
In your area
CLAPA covers the whole of the United Kingdom. Please select your area for more information
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Central England
There are lots of activities and events happening across the region which includes Herefordshire, Leicestershire, Lincolnshire, Nottinghamshire, Rutland, Sheffield, Doncaster, Rotherham, Shropshire, Staffordshire, Warwickshire, Birmingham and the Black Country and Worcestershire. Contact: centralengland@clapa.com
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Local CLAPA Groups
Email centralengland@clapa.com if you're interested in setting up a new group in this region.
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East Midlands Branch
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Happy Faces Barnsley
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Happy Faces Derby
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Happy Faces Warwick
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West Midlands Branch
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West Midlands Patient Voices
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Cleft Teams
The Trent Cleft Service is based in Nottingham. The West Midlands Cleft Service is split across two sites - Birmingham Children's Hospital for under 16s and Queen Elizabeth Hospital for adult patients.
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Birmingham Children’s Hospital (West Midlands Cleft Service)
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Nottingham City Hospital (Trent Cleft Service)
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Parent contacts
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Dervil Dockrell
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Jane Grogan O’Brien
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Nadine Steele
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Latest area news
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10 Oct 2018
World Mental Health Day 2018
Wednesday 10th October is World Mental Health Day 2018. Read more about how being born with a cleft can affect your mental health, and how CLAPA is working to support people like you.
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20 Sep 2018
#PortraitPositive: Beth & Olivia’s Stories
Portrait Positive is a groundbreaking project to challenge ideas of beauty. 16 models with a visible difference, including several born with a cleft, had their portraits taken by world-renown photographer Rankin and were featured on Steven Tai's catwalk for London Fashion Week 2018.
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30 Jun 2018
An Emergency Appeal to the Cleft Community
CLAPA’s funding has been cut, and some services are at serious risk of closure. We urgently need your help to make sure this doesn’t happen.
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Latest area events
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9 Feb 2019 09:00 - 9 Feb 2019 11:00
Happy Faces Warwick special soft play meet up!
This special soft play event at Wacky Warehouse will be a chance for children to play and get to know each other while the parents can chat, share experiences and make friends.
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24 Apr 2019 09:30 - 24 Apr 2019 15:30
Adventure day for young people at Sycamore Adventure!
Join us for our first adventure day for young people in 2019! Sycamore Adventure has an amazing outdoor and indoor adventure playground barn, which offers a wide range of play structures, play equipment, a sensory room and a cafe.
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