I am Kirsten, mummy to Benjamin,  born in September 2014 with a wide bilateral cleft lip and palate. It was diagnosed at our 24 week scan after he was hiding his face at the 20 week scan. My nephew Cody was also born with a cleft so we were somewhat ready for the whirlwind that followed diagnosis although with no previous family history before my nephew it was still a shock! Benjamin is now a cheeky and charming toddler, and had had 3 surgeries so far – lip adhesion, lip and soft palate repair, and hard palate repair. He is currently under audiology and speech therapy due to severe glue ear for which he has recently started wearing hearing aids which have made a huge difference to him already.


Fina a Parent Supporter