Dervil

I’m the mother of twin boys born two months prematurely in 1997 in the USA. My husband David and I moved to the UK when the boys were 10 months old. Ben was born with a cleft of the hard and soft palate and some other oral problems that were later diagnosed as Van der Woude syndrome. He had his first operation at 3 days old and he had his palate repaired at 9 months. Killian was diagnosed with pyloric stenosis at about 6 months so both of my boys had extensive feeding issues due to reflux and behavioural problems and so were fed in a variety of ways e.g. nasogastric, gastrostomy, jejunostomy, squeezy bottles etc. It has been an interesting 18 years so far but I can say that they are now both healthy, well-adjusted boys and doing well at school so there is light at the end of the tunnel.