Are you passionate about healthcare for people affected by cleft?
Want the opportunity to express your views?
Want to make positive changes in your local cleft service?
Purpose of the Group
This group will bring together a range of people who can use their experiences of cleft services to highlight good practice and suggest improvement.
It will be involved in giving personal opinions on healthcare policies, giving ideas on how services can be improved and holding professionals to account for their decisions and their work.
How the Group will work
- Group members will meet to talk about their personal experiences, opinions and ideas.
- There could be visits from the cleft team and other health professionals.
- The group will be informal and meet in a relaxed space in either the Children’s Hospital or somewhere in Central Birmingham.
- Made up of up to 8 current patients or parents of the children’s or adult cleft service in Birmingham.
- There are likely to be four meetings a year, usually in Birmingham on an evening or weekend.
- The group will be supported by CLAPA’s Central Regional Coordinator.
What’s in it for you?
- Personal reward – see a positive change from your involvement
- Meet others like you locally and learn new skills to add to your CV
- Make a difference for people affected by cleft
More about CLAPA and the West Midlands Service
CLAPA is the only UK-wide voluntary organisation specifically helping those with, and affected by, cleft lip and palate.
The Regional CLEFT Service for the West Midlands is based at Birmingham Children’s Hospital NHS Trust and University Hospital Birmingham NHS Trust. The team includes cleft surgeons, pediatric dentists, orthodontists, speech & language therapists, ENT (ear, nose and throat) surgeons, a geneticist and specialist nurses.
To find out more please get in touch with Claire: [email protected] or 07792 772362