Parent Supporters

Our parent supporters are happy to offer support and share their experiences.

  • Karen

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    My daughter Hannah was born with UCLP in 2001. I didn't find out until Hannah was born that she had a cleft so it was a bit of a shock.

  • Sarah

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    My name is Sarah, I’m 34 years old, married, and have two daughters aged 5 and 2. My eldest, Erin, was born with a bilateral complete cleft lip and palate.

  • Maria

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    Hello my name is Maria and we have a daughter who was born with a cleft of the soft palate. As a family we have also been diagnosed with Stickler’s Syndrome type 1 along with eye and joint issues. Lily wears hearing aids and has had speech therapy.

  • Louise

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    Hello my name is Louise. I have a son Oliver who was born in 2002 with a cleft palate and PRS. I have been a parent contact since 2006.

    Cleft Palate Older Children Pierre Robin Sequence

  • Charlotte

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    I'm Charlotte , I was born in 1979 and I am married to Mark and we live on a small island. We have two boys Thomas who was born in 2010 and Oliver who was born in April 2014 with a cleft lip.

    Cleft Lip

  • Marianne

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    Hello, my name is Marianne. I am married to Paul and we have two children. My eldest, Jessica, was born in 2010 with severe Pierre Robin Sequence, and hearing issues.

  • Anne

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    My name is Anne. I am married to Danny and we have two children, Amber almost five (no cleft) and Leo aged three (born with a bilateral cleft lip and palate).

  • Melanie

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    Hi I'm Mel. I have 3 children. My first daughter had a cleft lip and the second one a cleft lip and palate. I was myself born with a cleft lip and palate. Please feel free to call or email. Even if you do not have any specific query it can be useful to chat with someone who has been through it all.

  • Max

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    Hi. I'm dad to lively Evie, who was born with unilateral cleft lip and palate in summer 2012 and am happy to talk to you about how cleft affects dads and families as a whole.

  • Emma

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    Hello I am Emma and I have one daughter, Florence Gracie, who was born in February 2011 with a bilateral cleft lip and palate, I have recently set up a Happy Faces Group

  • Claire

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    My son Oscar was born in August 2012 with a complete unilateral cleft lip and palate. We found out at our 20 week scan, it was a big shock at the time but we have come through both his repairs and he is now a very active and lively boy who keeps me on my toes!