JLA Cleft Survey

About The Survey

Have you ever asked your doctor, nurse or indeed anyone a question about clefting only to have them say that they don’t know the answer?
Can you think of any questions about clefting you’d like answered?
Is there anything about its cause, diagnosis, treatment or long term outcome that you are uncertain about?
Do you think that answering that question through research will help to improve the lives of people with a cleft?

This is your chance to make your views known.

How can I get involved?

We are inviting you to take part in the survey to collect all the unanswered questions on cleft lip and/or palate.

1. Read the background information

Before taking the survey please read this background information first.

2. Complete the survey

It will take you around 5-10 minutes. You can do this in a number of different ways:

You will be asked to give details of all your unanswered questions about clefting which you wish to be entered into the prioritisation process. You can enter as many or as few as you like. The survey will also ask you some optional questions about you.

About the PSP

The Cleft Lip and Palate Priority Setting Partnership (PSP) aims to work with people with clefts of the lip and/or palate, their carers and clinicians to identify and decide the most important research questions associated with clefting today.

For further information see http://www.lindalliance.org/CleftPSP.asp