Health Professionals

Parent Case Stories

Daughter Rebekah was born in May 2007 with a left bilateral cleft lip and palate.

"When I got in the car home I cried my eyes out at the realisation that my baby girl wasn’t perfect and the surgery etc that lay ahead. I got home and phoned my Mum to tell her, I was crying down the phone. To be honest I cried for about a week following the diagnosis."

 

 

Son Lucas has a unilateral cleft lip and palate and in the summer had his hard lip and palate repaired

"We fell in love with everything about Lucas, his cleft just made him more unique to us.”

 

 

Daughter Niamh was born in 2006 with a cleft palate.

"The operation was a success and the palate healed really well and the best bit was that I didn't need to squeeze the bottles for her - she could suck."

 

 

Son Reuben was born in 2006 profoundly deaf and with a cleft palate.

"My son will be 5 next month, which I can't believe!! He was born at 37 weeks and was tiny when he arrived. He had lots of checks and it was soon discovered he had a cleft palate. He had to be fed by NG tube for 10 months until he mastered a cup."

 

 

Marianne's daughter, Jesscia was born in 2010, with a cleft palate and Pierre Robin Sequence.

"We count our blessings every day for our daughter who has changed our lives."






Leah today

Katie's daughter, Leah was born in 2009 with a unilateral cleft lip and palate. 

"Although she did look very different and her cleft was very wide she had beautiful big blue eyes and lovely wisps of fair hair.  She was perfect to me."