Parents
A cleft in the palate means that your baby may have difficulty in sucking effectively as he or she is unable to create a good vacuum inside the mouth, and correctly position the tongue. Babies born with a cleft palate only, may be more difficult to feed than those born with a cleft lip or cleft lip and palate. Very occasionally it may be necessary to use a combination of naso gastric tube feeding and teat/breast feeding. During the first two months following birth.
What about plates?
Not
all teams are agreed on the benefits of using feeding and orthopaedic
plates from birth so do ask if and why a plate is considered necessary
for your baby.
Some teams use a small feeding plate for the baby to wear in the roof of the mouth. This may be made by your orthodontist to:
- assist with breast feeding
- protect the delicate tissue in the roof of the mouth
- keep baby's tongue out of the cleft
A special orthopaedic plate may be used to begin to apply pressure to close and align the cleft prior to surgery. Plates ( obdurators ) need to be checked and adjusted or renewed at intervals so the orthodontist will want to see your baby regularly.
What if milk escapes from the nose?
If the flow is too fast, milk may pass into the nose and cause sneezing, or some milk may come down the nose if your baby is being sick. Your baby will normally clear this but have some tissues or a bib handy!
What about oral hygiene?
Babies do not produce much saliva during the first 2 months of life. Formula fed babies may require 2 to 3 teaspoons of cooled boiled water after a feed to ensure that any milk is removed from the nasal airways. Formula milk left in the airways may result in a snuffly baby. This is not necessary for babies fed on breast milk as breastmilk leaves no deposits in those areas.
What about breastfeeding?
Breastfeeding a baby with a cleft palate works well when the cleft is small or narrow. The breast needs to be held well into the area where the palate is intact so that the baby can get a good grip and work at the breast with the tongue. A baby born with a cleft palate will need help in achieving a good "latch on". A specialist nurse will be able to help you with this.
If
your baby is allowed to practice on the soft breasts in the early days,
it will be easier for you to find a position that is comfortable for
both of you and baby will benefit from the valuable colostrum. At about
2 - 4 days after delivery when the breasts fill it will be natural for
him or her to have more difficulty in breastfeeding.
It is
helpful to have a good flow of milk, as your baby may not have a strong
enough suck to stimulate the flow. The flow of milk can be encouraged
by massaging the breast or by using a breast pump. Your midwife will be
able to show you how to massage your breast and hand express the milk
when a breast pump is not available.
The breasts need to be
expressed after feeding to ensure that they receive adequate
stimulation. The baby satisfies his thirst on first suckling and his
hunger on the hind milk which contains more calories. Your baby may
need to be supplemented using expressed breastmilk with an alternative
feeding method as his suckling may not give him sufficient volumes of
milk to ensure adequate growth.
If your baby is unable to
suckle at the breast prior to having the palate repaired it is possible
with commitment for him to taste and lick milk expressed onto the
nipple and be fed with expressed breast milk by another feeding method.
Many parents feel very satisfied having done this.
There are
several alternative cup and spoon type methods, cup feeding, and a
supplemental nursing system. Breast pumps can be hired and the baby
given mothers milk. Do talk to your midwife, cleft team feeding advisor
or CLAPA parent contact supporter about this.
Take it a week at a time and review the situation, deciding whether to continue for another week.
Breast
milk does not irritate the delicate tissue in the nose and throat as
much as formula milk and can help to reduce the risk of ear problems
developing.
There are some booklets written specifically for mothers who wish to breastfeed their baby with a cleft
What about bottle feeding?
Many babies will need extra help to enable them to take sufficient nourishment in a reasonable time, say 30-40 minutes.
You
need a teat on which your baby can grip well and a good flow of milk.
This can be achieved with an ordinary bottle, though the hole or holes
in the teat may need to be enlarged or extra ones made.
If
your baby is feeding slowly, it may be necessary to experiment with
different teats as some manage better with one such as an orthodontic
shaped teat. If using an orthodontic shaped teat the hole is best made
on the non-cleft side and slightly towards the tongue so that milk is
aimed downwards and away from the cleft.
Others need a soft bottle
which can be squeezed as the baby sucks to help the flow of milk . This
may give you more control than an enlarged hole. Nursing your baby in
the usual cradling position is possible in most cases. Babies born with
a cleft palate alone may be nursed and fed on their sides
Some
babies may not have the energy to suck from a teat, and here a cup and
spoon method may be helpful. Feeding from a scoop attached to a soft
bottle (e.g a Softplas bottle and scoop) requires less effort from the
baby.
What about feeding after the palate operation?
The
timing of the palate operation may vary from hospital to hospital,
depending on the type of cleft and operation that your surgeon
performs. This may mean that your baby is weaned , but still using a
bottle for milk or other liquids.
In some areas the surgeon
prefers you not to use a bottle immediately after the palate operation
so ask your team for advice, as you may need to get your baby used to a
spoon bottle or short spouted trainer cup before the operation. The
same may apply to a dummy
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Need to talk?
We have parent contacts available throughout the UK to support families affected by cleft lip and/or palate.
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