Medical Info

CLAPA has parent contacts all over the UK, who can offer personal knowledge of the difficulties that can be faced by new parents of babies born with a cleft lip and/or palate.

Parent Contacts

Cleft Net East
  • Anita Swales

    Has a daughter born with Pierre Robin sequence
    Location: Northampton   T: 01604 230675   E:

  • Lynsey McClelland

    Daughter born in 2005 with cleft of both the hard and soft palate.
    Location: Lincolnshire   T: 01526 344604   E:

  • Sam McCann

    Sam has a daughter born with cleft lip & palate
    Location: East Anglia   T: 01263 734418   E:

North Thames Cleft Service
  • Emma Cruse

    Emma was born with a cleft lip & palate
    Location: Hounslow, Middlesex   T: 0208 569 4120   E:

  • Heather Pownall

    Heather has a daughter born with cleft lip & palate
    Location: Thundersley, Essex   T: 01702 555267   E:

  • Jacky Longman

    Has a son born with cleft lip and palate
    Location: Essex   T: 01376 520640   E:

  • Jacqui Holdsworth

    Jacqui has a son born with cleft lip & palate
    Location: London   T: 0208 840 8557   E:

  • Jane Hughes

    Jane has a son was born with cleft lip & palate
    Location: London   T: 0208 518 8660   E:

  • Kate Ashley

    Kate has a daughter born with a cleft lip
    Location: London   T: 0207 813 7595   E:

  • Katrien Vereecke

    Katrien has a daughter born with cleft lip & palate
    Location: London   T: 0208 809 7894   E:

  • Lauren King

    Has a daughter born with Pierre Robin Sequence in 2006.
    Location: Essex   T: 01277 201207   E:

  • Sally Huggins

    Sally has a child born with cleft lip and palate
    Location: London   T: 07595 548 927   E:

  • Sandy Callagher

    Sandy has a son with cleft lip & palate
    Location: South London   T: 0208 690 2875

  • Sue Field

    Sue has a daughter born with cleft lip & palate
    Location: Laindon, Essex   T: 01268 490224   E:

  • Susan Chapman

    Location: Essex   E:

Northern and Yorkshire Cleft Service
  • Sue Clubley

    Has a son with cleft lip and palate.
    Location: Hull   T: 01964 650 421   E:

Northern Ireland Cleft Service
  • Liz Wallace

    Has a son born with bilateral cleft lip & palate
    Location: Belfast   T: 02890 584183   E:

Northwest Cleft Service
  • Carla Butler

    Has a daughter with a unilateral cleft lip and palate.
    Location: Shevington, Wigan   T: 07738 364 669   E:

  • Caroline Smith

    Caroline is an adult born with a unilateral cleft lip and a cleft palate.
    Location: Cheshire   T: 01625 428715   E:

  • Charlotte Cooklin

    Charlotte has a son born with cleft lip & palate
    Location: Merseyside   T: 0151 2227209

  • Dena Corden-Lepetit

    Has a daughter born with a cleft lip and submucasl cleft palate.
    Location: Staffordshire   T: 01782 550283   E:

  • Lisa Steel

    Has a daughter with a cleft of the soft palate and di George Syndrome.
    Location: Preston, Lancashire   T: 01772 745 402   E:

  • Louise Judge

    Louise has a son, born 2002, with a cleft palate and Pierre Robin Sequence.
    Location: Merseyside   T: 01744 810581   E:

  • Lynda Polland

    Parent of a child born with a cleft palate
    Location: Livingston, Scotland   T: 01506 494180

  • Michaela Lefley

    Michaela has a son, born 2002, with a cleft palate.
    Location: Manchester   T: 0161 2881571   E:

  • Paula Louise Reid

    Has a daughter with a cleft lip.
    Location: Merseyside   T: 077 0493 3724

  • Sarah Thomas

    Has a daughter with complete bilateral cleft of the top palate.
    Location: Llanbedrgoch   T: 01248 450486   E:

Scottish Cleft Network
  • Caroline McNiff

    Parent of a child born with a cleft palate
    Location: Aberdeen, Scotland   T: 01224 862399

  • Elizabeth Kelly

    21 year old son with cleft lip.
    Location: Glasgow   T: 01236 610299   E:

  • Jackie Law

    Parent of a child born with cleft lip & palate
    Location: Edinburgh, Scotland   T: 0131 4440714   E:

  • Sarah Walsh

    Location: Edinburgh, Scotland   T: 01315 386 072   E:

  • Sonia Oriahi

    Parent of a child born with cleft lip & palate
    Location: Falkirk, Scotland   T: 01324 411500   E:

  • Valerie Stewart

    Parent of a child born with unilateral cleft lip & palate
    Location: Aberdeen, Scotland   T: 01467 629435   E:

  • Wendy Tully

    Parent of a child born with cleft lip & palate
    Location: Dalkeith, Scotland   T: 0131 6633677   E:

South Thames Cleft Service
  • Barry Hancock

    Has a son born with a bilateral cleft lip and palate.
    Location: Surrey   T: 01483 275672   E:

  • Emmy Hames

    Has a daughter with a unilateral complete cleft
    Location: Surrey   T: 079 7440 0548   E:

  • Jacqui Curd

    Has a son with a bilateral cleft lip and palate.
    Location: Kent   T: 077 1243 2906   E:

  • Kerry Dwyer

    Has a daughter born with cleft lip & palate
    Location: Surrey   T: 01252 337711   E:

  • Patricia Chiswell

    Has a grandsone with a bilateral cleft lip & palate
    Location: Farnborough, Hampshire   T: 01252 540405   E:

  • Ros Hext

    Has an adult child with cleft lip & palate
    Location: Surrey   T: 01932 341463   E:

  • Sarah Goodwin

    Has a daughter with a cleft of the soft palate.
    Location: Kent   T: 01634 318975   E:

  • Vicki Wolf

    Has a daughter with cleft lip and palate. Contact after 8pm
    Location: London   T: 0208 8741 665   E:

South Wales/South West Managed Clinical Network
  • Esther Rookes

    Esther has a son born with cleft lip & palate
    Location: Devon   T: 01822 853862   E:

  • Karin Crozier

    Karin has a child with cleft lip & palate
    Location: Bristol   T: 01275 836421   E:

  • Natalie Rigg

    Natalie has a son with cleft lip & palate
    Location: South West   T: 0117 9245445   E:

  • Rachel Kellar

    Has a son born with a cleft lip and alveolus.
    Location: Chepstow, Gwent   T: 07754 760 860   E:

  • Sarah Whiteman

    Sarah has a son with cleft lip & palate
    Location: West Glamorgan   T: 01639 794145   E:

  • Susan Burrows

    Location: Mid Glamorgan   T: 01443 209117   E:

  • Wendy Adams

    Has a child born with cleft lip & palate
    Location: Gwent   T: 01633 897694   E:

Spires Cleft Service
  • Denise Brown

    Denise has a daughter born with a cleft lip
    Location: Romsey, Hampshire   T: 01794 324859   E:

  • Lynda Warne

    Lynda has a child born with cleft lip & palate
    Location: Fordingbridge, Hampshire   T: 01725 512805

  • Nathan Wall

    Nathan has a child born with cleft lip & palate
    Location: Salisbury, Wiltshire   T: 01722 327236

  • Nikki Wall

    Nikki has a child born with cleft lip & palate
    Location: Salisbury, Wiltshire   T: 01722 327236

Trent Cleft Service
  • Harry Feather

    Has a son with a complete unilateral cleft lip and palate.
    Location: Sheffield   T: 07875 468 103   E:

  • Heather Fryer

    Heather has a son, born 1990, with a bilateral cleft lip and a cleft palate.
    Location: Leicestershire   T: 0116 2200555   E:

  • Jackie Isherwood

    Jackie has 2 sons born with a cleft of the hard and the soft palate and Sticklers Syndrome.
    Location: Lincolnshire   T: 01522 884884   E:

  • Ruth Feather

    Has a son with a complete unilateral cleft lip and palate.
    Location: Sheffield   T: 077 7903 4790   E:

  • Sandra Cambell

    Sandra has a son, born 1993, with a bilateral incomplete cleft lip and palate.
    Location: Leicestershire   T: 0116 2916823   E:

  • Verena White

    Location: Nottingham   T: 01159 170 587

  • Zoe Watson

    Zoe has a son, born 2002, with a unilateral cleft lip and palate.
    Location: Nottinghamshire   T: 07756 827947   E:

West Midlands Cleft Service
  • Andrea Reiling

    Andrea has a child with a cleft lip & palate
    Location: Stafford   T: 01785 282505   E:

  • Judith Lue-Quee

    Judith was born with a cleft lip & palate
    Location: Wolverhampton   T: 01902 847706

  • Karen Robertson

    Karen has a child born with cleft lip & palate
    Location: Birmingham   T: 0121 6821450   E:

  • Susan Henlan

    Susan has a child born with cleft lip & palate
    Location: Warwickshire   T: 01564 782724   E:

  • Tracey Hinchcliffe

    Parent of a child born with a bi-lateral cleft lip and palate.
    Location: Shropshire   T: 01952 245467   E:

  • Tracy Wareham

    Tracy has a child with cleft lip & palate
    Location: Stoke-on-Trent   T: 01782 323775

  • Vicky Jackson

    Vicky has a child with cleft lip & palate
    Location: Wolverhampton   T: 01902 493483   E: