Medical Info
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European Cleft Organisation
The European Cleft Organisation was established in July 2007 and is based in the Hague, Holland. It was set up as a pan European partnership between service users (patients and parents) and health professionals involved with their care. This is reflected in the membership of the board which comprises patient representatives and health professionals in equal measure. Central to the organisation’s philosophy is that patients and user groups must work in partnership with health professionals, throughout Europe, to enhance cleft care.
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Changing Faces
UK organisation offering information and support to children and adults who have facial disfigurements.
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Face Forward
Home to message boards for people affected by cleft lip and palate and an online chat room.
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Cleft Lip and Palate Association of Ireland
Irish organisation offering information and support to individuals and families affected by cleft lip/palate.
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Eurocran International Support
European collaboration on craniofacial anomalies. Links to support groups in European countries.
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Cleft Palate Foundation
US organisation offering information to parents of babies born with clefts and other craniofacial anomalies and to health care professionals who are involved in the care of affected infants.
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CleftPALS QLD Inc
Cleft Palate and Lip Society, Queensland Division, Australia.
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LKG-foreningen in Stockholm
Swedish organisation for people born with cleft lip/palate, parents of young children and health professionals.
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Wide Smiles
US organisation offering information and support to individuals and families affect by cleft lip/palate.
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Wolfgang Rosenthal Gesellschaft
German self-help group for families affected by cleft lip and/or palate.
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I CAN
A childrens communication charity who work to develop speech, language and communication skills for all children.
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Talking Point
Talking Point is a website all about speech, language and communication difficulties in children. It has a range of information and resources for parents and carers of children and also for professionals.
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The Cleft Club
This is an interactive US club for people affected by cleft lip/palate. There are different forums where messages can be read and posted.
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Cleft-Support
US interactive site for teens.
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American Cleft Palate-Craniofacial Association (AC
US based international association of health care professionals involved in the treatment of and research into cleft lip, cleft palate and other craniofacial anomalies.
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Max Appeal
UK support group for families affected by DiGeorge Syndrome.
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22q11 Group
Group formed by parents of children with Velo Cardio Facial Syndrome/Sprintzen Syndrome/Di George Syndrome
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Stickler Support Group
UK organisation offering information and support to individuals and families affected by Stickler Syndrome
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UK Self Help Groups
Index of self help groups in the UK
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Active Birth Centre
Information on many aspects of pregnancy and birth, breastfeeding and babycare.
