About Cleft Lip & Palate
Cleft means 'split' or 'separation'. During early pregnancy separate areas of the face develop individually and then join together. If some parts do not join properly the result is a cleft, the type and severity of which can vary. See below for more information...
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Parent Support
The most important thing that a parent contact can offer is personal knowledge of the difficulties faced by new parents.
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About Pierre Robin Sequence
Brief introduction to PRS
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Understanding Cleft Lip & Palate
The basics : an introduction to Cleft Lip and Cleft Palate
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Stickler Syndrome
By Wendy Hughes, Founder of the Stickler Syndrome Support Group
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Glossary of medical terms
A list of cleft related terms explained.
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Van der Woude Syndrome
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22q11 Deletion
Also known as DiGeorge Syndrome
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Guidelines on grommets
The NICE has just published a report on grommets for the treatment of glue ear in children
Frequently Asked Questions
Surgery photos
To give you an idea of what can be achieved with surgery, we've put together a gallery of pre- and post- operation photos.
View the gallery >If strangers stare, tell them what your child has. It usually brings up a nice dialogue and congratulate yourself; you've just educated another person!
Parent
Always be open about the cleft with your child and other members of the family. The cleft should be a normal topic of conversation, discussed with your child from an early age.
Adult with cleft
