Hi my son was born with complete cleft palate and pierre robins sequence which he had repaired at 12 months no holes and healed really well.  Unfortuneately his speech remains poor (will be 4 next month) and he now needs another operation to improve this (end of Jan 2010) Can anybody share their experiences with a re repair because of poor speech? starting to get anxious re what to expect. how much speech will actually improve. thank you x

Hi, i have recently found out that my daughter, who will be 5 in feb next year needs to have a re-repair of her palate as it is affecting her speech. What affect has it had on your child? My daughter struggles to say ‘s’ and ‘f’ and there is also turbulance when she talks.